HUInc Health-Related Quality of Life Research

HEALTH UTILITIES INC

References
 

A Few Sources of Information
on the Health Utilities Index (HUI®)

November 20, 2007

HUI-related papers compiled by 
David Feeny1,2,3,4William Furlong1,4 and George W. Torrance1,4,5
1Health Utilities Inc., Dundas, Ontario, Canada
2University of Alberta, Edmonton, Alberta, Canada
3Institute of Health Economics, Edmonton, Alberta, Canada
4Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ontario, Canada
5Innovus Research Inc., Burlington, Ontario, Canada

Review Studies
Methodological Studies
Clinical and Evaluative Studies
Population Health Applications
HUI3 in Canadian Population Health Surveys
Clinical area or health-care problems studied using HUI
Country of study where HUI has been utilized
NOTE: There is duplication of entries deemed to be relevant in more than one of the above categories

Review Studies (Listed chronologically)

Feeny, David, "The Health Utilities Index: A Tool for Assessing Health Benefits" PRO Newsletter (#34, 2005 in press) [NOTE: formerly known as Quality of Life Newsletter]

Horsman, John, William Furlong, David Feeny, and George Torrance, "The Health Utilities Index (HUI®): Concepts, Measurement Properties and Applications." Health and Quality of Life Outcomes (electronic journal) (Vol. 1: 54, October 16, 2003), at http://www.hqlo.com/content/1/1/54

Torrance GW, Furlong W, Feeny D. "Health utility estimation." Expert Review of Pharmacoeconomics and Outcomes Research, Vol. 2(2), 2002, pp 99-108. [Constructs and Inter-Instrument Comparisons]

Eiser, Christine, Rachel Morse, "The Measurement of Quality of Life in Children: Past and Future Perspectives." Developmental and Behavioral Pediatrics, Vol. 22, No. 4, 2001, pp 248-256. [Measurement Properties, Inter-Instrument Comparisons]

Furlong, William J., David H. Feeny, George W. Torrance, Ronald D. Barr, "The Health Utilities Index (HUI®) system for assessing health-related quality of life in clinical studies." Annals of Medicine, Vol. 33, No. 5, July, 2001, pp 375-384. [Description of Systems; Reliability; Scoring; Validity][Canada]

Feeny, David H., George W. Torrance, and William J. Furlong, "Health Utilities Index," Chapter 26 In Bert Spilker, ed. Quality of Life and Pharmacoeconomics in Clinical Trials. Second Edition. Philadelphia: Lippincott-Raven Press, 1996, pp 239-252. [Description of Systems; Reliability; Scoring; Validity][Canada, Pediatric ALL]

Methodological Studies [Cross-Cultural Validation; Description; Development of Systems; Interpretability; Reliability; Responsiveness; Scoring; Theory; Validity] (Listed alphabetically by 1st author)

Asada, Yukiko, "Medical Technologies, Nonhuman Aids, Human Assistance, and Environmental Factors in the Assessment of Health States." Quality of Life Research, Vol. 14, No. 3, April, 2005, 867-874. [HUI3; Construct Validity]

Barr, Ronald D., David Feeny, and William Furlong, "Economic Evaluation of Treatments for Cancer in Childhood." European Journal of Cancer, Vol. 40, No. 9, June, 2004, pp 1335-1344. [HUI2; HUI3][childhood cancer]

Barr RD, Saleh M, Furlong W, Horsman J, Sek J, Pai M, Walker I. "Health status and health-related quality of life associated with hemophilia." Am J Hematology,Vol. 71, 2002, pp 152-160. [HUI2, HUI3, Construct Validity; Responsiveness][Canada, Hemophilia]

Barr, Ronald D., Claire Petrie, William Furlong, Marilyn Rothney, and David Feeny, "Health-Related Quality of Life during Post-Induction Chemotherapy in Children with Acute Lymphoblastic Leukemia in Remission:  An Influence of Corticosteroid Therapy." International Journal of Oncology, Vol. 11, 1997, pp 333-339. [Construct Validity; Responsiveness][Canada, Pediatric ALL]

Blanchard, Chris, David Feeny, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and susan Webster-Bogaert, "Is the Health Utilities Index Valid in Total Hip Arthroplasty Patients?," Quality of Life Research, Vol. 13, No. 2, March, 2004, pp 339-348. [HUI2; HUI3; Construct validity] [Canada, hip disease]

Blanchard, Chris, Isabelle C, and David Feeny, "Comparing Short Form and RAND Physical and Mental Health Summary Scores: Results from Total Hip Arthroplasty and High-Risk Primary-Care Patients," International Journal of Technology Assessment in Health Care, Vol. 19, No. 4, 2003, pp 1-7. [HUI3; Construct Validity][Canada, clinical, hip disease, osteoarthritis, total hip arthroplasty]

Blanchard, Chris, David Feeny, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and Susan Webster-Bogaert, "Is the Health Utilities Index Valid in Total Hip Arthroplasty Patients?," Quality of Life Research (2003), in press. [HUI2; HUI3; Construct Validity][Canada, osteoarthritis, total hip arthroplasty]

Blanchard, Chris, David Feeny, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and Susan Webster-Bogaert, "Is the Health Utilities Index Responsive in Total Hip Arthroplasty Patients,?" Journal of Clinical Epidemiology, Vol. 56, No. 11, November 2003, pp 1046-1054. [HUI2; HUI3; Construct Validity; Responsiveness][Canada, clinical, hip disease, osteoarthritis, total hip arthroplasty]

Bosch, Johanna L., Elkan f. Halpern, and G. Scott Gazelle, "Comparison of Preference-Based Utilities of the Short-Form 36 Health Survey and Health Utilities Index Before and After Treatment of Patients with Intermittent Claudication." Medical Decision Making, Vol. 22, No. 5, September-October 2002, pp 403-409. [HUI2, HUI3, Construct Validity; Responsiveness] [Netherlands, Intermittent Claudication]

Bosch, Johanna L., James K. Hammitt, Milton C. Weinstein, and Maria G. Hunink, "Estimating General-population Utilities Using One Binary-gamble Question per Respondent." Medical Decision Making, Vol. 18, No. 4, October-December, 1998, pp 381-390. [Scoring][USA]

Boyle Michael H, and George W. Torrance, "Developing Multi-attribute Health Indexes." Medical Care, Vol. 22, No.11, November, 1984, pp 1045-1057. [Development of Systems]

Boyle, Michael H., William Furlong, David Feeny, George Torrance, and Jeff Hatcher, "Reliability of the Health Utilities Index - Mark III Used in the 1991 Cycle 6 General Social Survey Health Questionnaire." Quality of Life Research, Vol. 4, No 3, June, 1995, pp 249-257. [Reliability][Canada]

Brazier, John, Jennifer Roberts, Aki Tsuchiya, and Jan Busschbach, "A Comparison of the EQ-5D and SF-6D Across Seven Patient Groups." Health Economics, Vol. 13, No. 9, September, 2004, pp 873-884. [HUI3; Construct Validity; Responsiveness]

Buron, Catherine, Catherine Le Galès, Nathalie Costet, et al. "Développement d'un Système de Classification Générique d'états de santé pondéré par les Utilités: le Health Utility Index." Communication Présentée au XIXème Séminaire des Économistes de la Santé. Lyon, October 16-17, 1997. [Cultural Adaptation][France]

Cadman, David, and Charles Goldsmith, "Construction of Social Value or Utility-Based Health Indices: The Usefulness of Factorial Experimental Design Plans." Journal of Chronic Disease, Vol. 39, No. 8, 1986, pp 643-651. [Development of Systems; Scoring]

Cadman, David, Charles H. Goldsmith, and P. Bashim, "Values, preferences, and decisions in the care of children with developmental disabilities." Developmental and Behaviourial Pediatrics, Vol. 5, 1984, pp 60-64. [Development of Systems; Scoring]

Cadman, David, Charles Goldsmith, George W. Torrance, et al., "Development of a Health Status Index for Ontario Children," Final Report to the Ontario Ministry of Health on Research Grant DM648 (00633). Hamilton, Ontario: McMaster University, 1986. [Development of Systems; Scoring]

Conner-Spady, Barbara, and Maria E. Suarez-Almazor, "Variation in the Estimation of Quality- Adjusted Life-Years by Different Preference-based Instruments." Medical Care, Vol. 41, No. 7, July, 2003, pp 791-801. [HUI3; Construct Validity; Responsiveness][Canada, musculoskeletal disease]

Cookson, Richard, "QALYs and the Capability Approach." Health Economics, Vol. 14, No. 8, August, 2005, pp 817-829. [HUI2; HUI3]

Costet, Nathalie, Catherine Le Galès, Catherine Buron, Françoise Kinkor, Mounir Mesbah, Judith Chwalow, Clinical and Economic Working Groups, and Gérard Slama, "French Cross-Cultural Adaptation of the Health Utilities Index Mark 2 (HUI2) and 3 (HUI3) Classification Systems." Quality of Life Research, Vol. 7, No. 3, April, 1998, pp 245-256. [Cross-Cultural Validation][France]

Côté, Isabelle, Karen Farris, and David Feeny, "Is Adherence to Drug Treatment Correlated with Health-Related Quality of Life?" Quality of Life Research, Vol. 12, No. 6, September, 2003, pp 621-633. [HUI2; HUI3; Construct Validity][Canada]

Cox, Cheryl L., Shelly Lensing, Shesh N. Rai, Pam Hinds, Elizabeth Burghen, and Ching-Hon Pui, "Proxy Assessment of Quality of Life in Pediatric Clinical Trials: Application of the Health Utilities Index 3." Quality of Life Research, Vol. 14, No. 4, May, 2005, pp 1045-1056. [HUI3; Reliability; Inter-Rater Reliability; Proxy Assessment][USA, childhood cancer]
(Commentary) Furlong, William, and Ronald D. Barr, "Commentary on Cox CL, Lensing S, Rai SN et al. Proxy Assessment of Quality of Life in Pediatric Clinical Trials: Application of the Health Utilities Index 3. Qual Life Res 2005; 14: 1045-1056." Quality of Life Research, Vol. 15, No. 7, September, 2006, pp 1291-1293.
(Response) Hinds, Pamela S., and Shesh N. Rai, "Reponse to the Commentary by Furlong & Barr on Cox CL, Lensing S, Rai SN et al. Proxy Assessment of Quality of Life in Pediatric Clinical Trials: Application of the Health Utilities Index 3." Quality of Life Research, Vol. 15, No. 7, September, 2006, pp 1295-1296.[HUI3; Reliability; Inter-Rater Reliability; Proxy Assessment]

de Vries, Sybolt O., Wietze D. Kuipers, Maria G. M. Hunink, "Intermittent Claudication: Symptom Severity Versus Health Values." Journal of Vascular Surgery, Vol. 27, 1998, 422-430. [Construct Validity][Netherlands, Peripheral Artery Disease]

Drummond, Michael, "Introducing Economic and Quality of Life Measurements into Clinical Studies." Annals of Medicine, Vol. 33, No. 5, July, 2001, pp 344-349.[Review]

Drummond, Michael F., Greg L. Stoddart, and George W. Torrance, Methods for the Economic Evaluation of Health Care Programmes. Oxford: Oxford University Press, 1987. [Description of Systems and Scoring; Theory]

Drummond, Michael F., Bernie O'Brien, Greg Stoddart, and George W. Torrance, Methods for the Economic Evaluation of Health Care Programmes. Second Edition. Oxford: Oxford University Press, 1997. [Description of Systems and Scoring; Theory]

Drummond, Michael F., Mark J. Sculpher, George W. Torrance, Bernie O'Brien, and Greg L. Stoddart, Methods for the Economic Evaluation of Health Care Programmes. Third Edition. Oxford: Oxford University Press, 2005. [Description of Systems and Scoring; Theory]

Eiser, Christine, Rachel Morse, "The Measurement of Quality of Life in Children: Past and Future Perspectives." Developmental and Behavioral Pediatrics, Vol. 22, No. 4, 2001, pp 248-256. [Measurement Properties, Inter-Instrument Comparisons]

Espallargues, Mireia, Carolyn J. Czoski-Murray, Nicholas J. Bansback, Jill Carlton, Grace M. Lewis, Lindsey A. Hughes, Christopher S. Brand, and John E. Brazier, "The Impact of Age- Related Macular Degenerationon Health Status Utility Values." Investigative Ophthalmology and Visual Science, Vol. 46, No. 11, November, 2005, pp 4016-4023. [HUI3; Construct Validity][UK, Vision]

Ettema, Teake P., Rose-Marie Droes, Jacomine de Lange, Gideon J. Mellenbergh, and Miel W. Ribbe, "A Review of Quality of Life Instruments Used in Dementia." Quality of Life Research, Vol. 14, No. 3, April, 2005, pp 675-686. [HUI2; HUI3; Review Article][mental health]

Feeny, David, "The Multi-Attribute Utility Approach to Assessing Health-Related Quality of Life," Chapter 34 in Andrew M. Jones, ed., The Elgary Companion to Health Economics, Cheltenham, Edward Elgar Publishing Ltd., 2006, pp 359-370. [HUI2; HUI3; Review Article]

Feeny, David, "Health-Status Classification Systems for Summary Measures of Population Health." Chapter 7.2 in Christopher J.L.Murray, Joshua A. Salomon, Colin D. Mathers, and Alan D. Lopez, eds., Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications. Geneva, World Health Organization, 2002, pp 329-341. [HUI2, HUI3, Review]

Feeny, David, "The Utility Approach to Assessing Population Health," Chapter 10.2 in Christopher J.L.Murray, Joshua A. Salomon, Colin D. Mathers, and Alan D. Lopez, eds., Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications. Geneva, World Health Organization, 2002, pp 329-341. [HUI2, HUI3, Review]

Feeny, David, "Comparing and Contrasting Utilities and Willingness to Pay," Chapter 20 in William R. Lenderking and Dennis A. Revicki, eds., Advancing Health Outcomes Research Methods and Clinical Applications, McLean, Virginia, International Society for Quality of Life Research and Degnon Associates, Inc., 2005, pp 353-367. [HUI2; HUI3; Review Article]

Feeny, David, "Preference-Based Measures: Utility and Quality-Adjusted Life Years," Chapter 6.2 in Peter Fayers and Ron Hays, eds., Assessing Quality of Life in Clinical Trials, Second Edition, Oxford, Oxford University Press, 2005, pp 405-429. [HUI2; HUI3; Review Article]

Feeny, David, "The Health Utilities Index: A Tool for Assessing Health Benefits." PRO Newsletter, No. 34, Spring, 2005, pp 2-6. [HUI2; HUI3; Review Article]

Feeny, David, "The Roles for Preference-Based Measures in Support of Cancer Research and Policy," Chapter 4 in Joseph Lipscomb, Carolyn Cook Gotay, and Claire Snyder, eds., Outcomes Assessment in Cancer: Findings and Recommendations of the Cancer Outcomes Measurement Working Group, New York, Cambridge University Press, 2005, pp 69-92. [HUI2; HUI3; Review Article]

Feeny, David, "Preference-Based Measures: Utility and Quality-Adjusted Life Years," Chapter 6.2 in Peter Fayers and Ron Hays, eds., Assessing Quality of Life in Clinical Trials, Second Edition, Oxford University Press, 2005, pp 405-429, in press. [HUI2; HUI3; Review Article]

Feeny, David, Lieling Wu, and Ken Eng, "Comparing Short Form 6D, Standard Gamble, and Health Utilities Index Mark 2 and Mark 3 Utility Scores: Results from Total Hip Arthroplasty Patients." Quality of Life Research, Vol. 13, No. 10, December 2004, pp 1659-1670. [HUI2; HUI3; Scoring][Canada, Osateoarthritis, Total Hip Arthroplasty]

Feeny, David, Chris Blanchard, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and Susan Webster-Bogaert, "Comparing Community-Preference Based and Direct Standard Gamble Utility Scores: Evidence from Elective Total Hip Arthroplasty." International Journal of Technology Assessment in Health Care, Vol. 19, No. 2, Spring, 2003, pp 362-372. [HUI2; HUI3; Scoring][Canada, osteoarthritis, total hip arthroplasty]

Feeny, David, William Furlong, Saroj Saigal, and Jian Sun,"Comparing Directly Measured Standard Gamble Scores to HUI2 and HUI3 Utility Scores: Group and Individual-Level Comparisons." Social Science & Medicine, Vlo 58 No. 4, 2003, pp 799-809. [HUI2; HUI3; Scoring][Canada, Extremely low birthweight, pediatrics]

Feeny, David, "A Utility Approach to Assessing Health-Related Quality of Life." Medical Care, Vol. 38, No. 9, Supplement II, September, 2000, pp II-151 - II-154. [Theory]

Feeny, David and George W. Torrance, "Incorporating Utility-Based Quality-of-Life Assessments in Clinical Trials: Two Examples." Medical Care, Vol. 27, No. 3, Supplement, March, 1989, pp S190-S204. [Theory]

Feeny, David, William Furlong, Ronald D. Barr, George W. Torrance, Peter Rosenbaum, and Sheila Weitzman, "A Comprehensive Multiattribute System for Classifying the Health Status of Survivors of Childhood Cancer." Journal of Clinical Oncology, Vol. 10, No. 6, June, 1992, pp 923-928. [Description; Construct Validity][Canada, ALL, Wilms Tumour, Neuroblastoma]

Feeny, David, William Furlong, Michael Boyle, and George W. Torrance, "Multi-Attribute Health Status Classification Systems: Health Utilities Index." PharmacoEconomics, Vol 7, No 6, June, 1995, pp 490-502. [Description; Development of Systems]

Feeny, David, William Furlong, George W. Torrance, Charles H. Goldsmith, Zenlong Zhu, Sonja DePauw, Margaret Denton, and Michael Boyle, "Multi-Attribute and Single-Attribute Utility Functions for the Health Utilities Index Mark 3 System." Medical Care, Vol. 40, No. 2, February, 2002, pp 113-128. [Scoring HUI3]

Feeny, David H., George W. Torrance, and William J. Furlong, "Health Utilities Index," Chapter 26 In Bert Spilker, ed. Quality of Life and Pharmacoeconomics in Clinical Trials. Second Edition. Philadelphia: Lippincott-Raven Press, 1996, pp 239-252. [Description of Systems; Reliability; Scoring; Validity][Canada, Pediatric ALL]

Feeny, David H., George W. Torrance, and Roberta Labelle, "Integrating Economic Evaluations and Quality of Life Assessments," In Bert Spilker, ed. Quality of Life and Pharmacoeconomics in Clinical Trials. Second Edition. Philadelphia: Lippincott-Raven Press, 1996, pp 85-95. [Description of Systems and Scoring]

Feeny, David, William Furlong, and Ronald D. Barr, "Multiattribute Approach to the Assessment of Health-Related Quality of Life: Health Utilities Index." Medical and Pediatric Oncology, Vol. 31, Supplement 1, 1998, pp 54-59. [Construct Validity; Responsiveness][[Canada, Pediatric ALL]

Felder-Puig, Rosemarie, E. Frey, G. Sonnleithner, David Feeny, H. Gadner, Ronald D. Barr, William Furlong, and Reinhard Topf, "German Cross-Cultural Adaptation of the Health Utilities Index and Its Application to a Sample of Childhood Cancer Survivors." European Journal of Pediatrics, Vol. 159, No. 4, April, 2000, pp 283-288. [Cross-Cultural validation; Construct Validity; Reliability/Agreement][German/Austria; Childhood Cancer]

Fisher, Gregory W., "Utility Models for Multiple Objective Decisions: Do They Accurately Represent Human Preferences." Decision Sciences, Vol. 10, 1979, pp 451-479. [Theory]

Fisk, J. D., M. G. Brown, I. S. Sketris, L. M. Metz, T. J. Murray, and K. J. Stadnyk, "A Comparison of Health Utility Measures for the Evaluation of Multiple Sclerosis Treatments." Journal of Neurology, Neurosurgery, and Psychiatry, Vol. 76, No. 1, January, 2005, pp 58-63. [HUI3; Construct Validity; Test-Retest Reliability][Canada, Multiple Sclerosis]

Franks, Peter, Erica L. Lubetkin, Marthe R. Gold, and Daniel J. Tancredi, "Mapping SF-12 to Preference-Based Instruments: Convergent Validity in a Low-Income, Minority Population." Medical Care. Vol. 41, No. 11, November, 2003, pp 1277-1283. [HUI3; scoring][USA]

Furlong, William J., David H. Feeny, George W. Torrance, Ronald D. Barr, "The Health Utilities Index (HUIR) system for assessing health-related quality of life in clinical studies." Annals of Medicine, Vol. 33, No. 5, July, 2001, pp 375-384. [HUI2; HUI3; Description of Systems; Reliability; Scoring; Validity][Canada]

Furlong, William, George W. Torrance, and David Feeny, "Properties of Health Utilities Index: Preliminary Evidence." Quality of Life Newsletter, Numbers 13-14, June, 1995 - January, 1996, pages 3, 4, and 10. [Construct Validity; Reliability]

Furlong, William, David Feeny, George W. Torrance, Charles Goldsmith, Sonja DePauw, Michael Boyle, Margaret Denton, and Zenglong Zhu, "Multiplicative Multi-Attribute Utility Function for the Health Utilities Index Mark 3 (HUI3) System: A Technical Report," McMaster University, Centre for Health Economics and Policy Analysis Working Paper No. 98-11.[Scoring][Canada]
To see the abstract for WP98-11 click here or on the CHEPA 98-11 navigation button on the left. Information on ordering CHEPA Working Papers may be obtained from:
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Furlong William J., David H. Feeny, George W. Torrance, and Ronald D. Barr, "The Health Utilities Index (HUI(r)) System for Assessing Health-Related Quality of Life in Clinical Studies." McMaster University Centre for Health Economics and Policy Analysis Working Paper No. 01-02, March, 2001.. Information on ordering CHEPA Working Papers may be obtained from the Centre for Health Economics and Policy Analysis, HSC 3H1, McMaster University, 1200 Main Street West, Hamilton, ON L8N 3Z5 Canada; (905) 525-9140, ext. 22122; FAX: (905) 546-5211; E-mail: chepa@mcmaster.ca; web: http://www.chepa.org/home/default.asp http://chepa.mcmaster.ca/[HUI2; HUI3; Description of Systems; Reliability; Scoring; Validity]

Gabriel, Sherine E., Terry S. Kneeland, L. Joseph Melton, III, Megan M. Moncur, Bruce Ettinger, and Anna N. A. Tosteson, "Health-Related Quality of Life in Economic Evaluations for Osteoporosis: Whose Values Should We Use?" Medical Decision Making, Vol. 19, No. 2, April-June, 1999, pp 141-148. [Scoring][USA, Osteoporosis]

Garratt, Andrew, Louise Schmidt, Anne Mackintosh, Ray Fitzpatrick, "Quality of life measurement: bibliographic study of patient assessed health outcome measures." BMJ, Vol. 324, No. 7351, 15 June 2002, pp 1417-1421. [Review]

Gemke, Reinoud J. B. J., and Gouke J. Bonsel, "Reliability and Validity of a Comprehensive Health Status Measure in a Heterogeneous Population of Children Admitted to Intensive Care." Journal of Clinical Epidemiology, Vol 49, No 3, March, 1996, 327-333. [Construct Validity; Reliability][Netherlands, Pediatric Intensive Care]

Glick, Henry A., Daniel Polsky, Richard J. Willke, and Kevin A. Schulman, "A Comparison of Preference Assessment Instruments Used in a Clinical Trial: Responses to the Visual Analog Scale from the EuroQol EQ-5D and the Health Utilities Index." Medical Decision Making, Vol. 19, No. 3, July-September, 1999, pp 265-275. [Construct Validity; Scoring][USA, Subarachnoid Haemorrhage, Adult]

Gold, Marthe R., Donald L. Patrick, George W. Torrance, Dennis G. Fryback, David C. Hadorn, Mark S. Kamlet, Norman Daniels, and Milton C. Weinstein, "Identifying and Valuing Outcomes," Chapter 4 in Marthe R. Gold, Joanna E. Siegel, Louise B. Russell, and Milton C. Weinstein, eds., Cost-Effectiveness in Health and Medicine. New York: Oxford University Press, 1996, pp 82-134. [Description of Systems; Theory]

Grima, Daniel T., George W. Torrance, G. Francis, G. Rice, A.J. Rosner and L. LaFortune, "Cost and Health Related Quality of Life Consequences of Multiple Sclerosis." Multiple Sclerosis, Vol. 6, No. 2, April, 2000, pp 91-98. [Construct Validity][Canada; Multiple Sclerosis]

Grootendorst, Paul, David Feeny, and William Furlong, "Does It Matter Whom and How You Ask? An Investigation into Inter- and Intra-rater Agreement in the 1990 Ontario Health Survey." Journal of Clinical Epidemiology, Vol. 50, No. 2, February, 1997, pp 127-135. [Reliability][Canada, Population Health]

Grootendorst, Paul, David Feeny, and William Furlong, "Health Utilities Index Mark 3: Evidence of Construct Validity for Stroke and Arthritis in a Population Health Survey." McMaster University, Centre for Health Economics and Policy Analysis Working Paper No. 99-06, June, 1999. [Construct Validity][Canada, Stroke]

Grootendorst, Paul, David Feeny, and William Furlong, "Health Utilities Index Mark 3: Evidence of Construct Validity for Stroke and Arthritis in a Population Health Survey." Medical Care, Vol. 38(3), March, 2000, pp 290-299. [Construct Validity][Canada, Stroke]

Harsanyi, John C., "Cardinal Welfare, Individualistic Ethics, and Interpersonal Comparisons of Utility." Journal of Political Economy, Vol. 63, 1955, pp 309-321. [Scoring; Theory]

Hatoum, Hind T., John E. Brazier, and Kasem S. Akhras, "Comparison of the HUI3 with the SF- 36 Preference Based SF-6D in a Clinical Trial Setting." Value and Health, Vol. 7, No. 5, September, 2004, pp 602-609. [HUI3; Construct Validity; Responsiveness]][Canada and USA, cardiovascular]

Hawthorne, Graeme, Jeff Richardson, "Measuring the Value of Program Outcomes: A Review of Multiattribute Utility Measures." Expert Reviews in Pharmacoeconomics Research, Vol. 1, No. 2, 2001, pp 215-228. [HUI3; Review Paper; Construct Validity]

Hawthorne, Graeme, Jeff Richardson, and Neil Atherton Day, "A Comparison of the Assessment of Quality of Life (AQoL) with four other Generic Utility Instruments." Annals of Medicine, Vol. 33, No. 5, July, 2001, pp 358-370. [HUI3; Review Paper; Construct Validity][Australia]

Houle, Christian, and Jean-Marie Berthelot, "A Head-to-Head Comparison of the Health Utilities Mark 3 and the EQ-5D for the Population Living in Private Households in Canada", Quality of Life Newsletter, No. 24, January-June 2000, pp 5-6. [Construct Validity][Canada]

Hung, Shih-Ying, A. Simon Pickard, Whitney P. Witt, and Bruce L. Lambert, "Pain and Depression in Caregivers Affected Their Perception of Pain in Stroke Patients." Journal of Clinical Epidemiology, Vol. 60, No. 9, September, 2007, pp 963-970. [HUI3; Construct Validity; Inter-Rater Reliability][Canada, stroke]

Janse, A. J., R. J. B. J. Gemke, C. S. P. M. Uiterwall, I. Van der Tweel, J. L. L. Kimpen, and G. Sinnema, "Quality of Life: Patients and Doctors Don't Always Agree: A Meta-Analysis." Journal of Clinical Epidemiology, Vol. 57, No. 7, July, 2004, pp 653-661. [HUI2; HUI3; Inter- rater Reliability][Netherlands, ALL, cystic fibrosis, arthritis, asthma]

Janse, A. J., G. Sinnema, C. S. P. M. Uiterwaal, J. L. L. Kimpen, and R. J. B. J. Gemke, "Quality of Life in Chronic Illness: Perceptions of Parents and Paeditricians." Archives of Diseases in Childhood, Vol. 90, No. 5, May, 2005, pp 486-491. [HUI3; Inter-rater Reliability][Netherlands, ALL, cystic fibrosis, arthritis, asthma]

Janse, A. J., C. S. P. M. Uiterwall, R. J. B. J. Gemke, J. L. L. Kimpen, and G. Sinnema, "A Difference in Perception of Quality of Life in Chronically Ill Children Was Found Between Parents and Pediatricians." Journal of Clinical Epidemiology, Vol. 58, No. 5, May, 2005, pp 495- 502. [HUI3; Construct Validity; Reliability][Netherlands, child health]

Jones, C. Allyson, David Feeny, and Ken Eng, "Test-Retest Reliability of Health Utilities Index Scores: Evidence from Hip Fracture." International Journal of Technology Assessment in Health Care, Vol. 21, No. 3, August, 2005, pp 393-398. [HUI2; HUI3; Test-Retest Reliability][Canada, hip fracture]

Jones, C. Allyson, and David H. Feeny, "Agreement Between Patient and Proxy Responses on Health-Related Quality of Life After Hip Fracture." Journal of the American Geriatrics Society, Vol 53, No. 7, July, 2005, pp 1227-1233. [HUI3; Reliability][Canada, hip fracture]

Jones. C. Allyson, David Feeny, and Ken Eng, "Test-Retest Reliability of Health Utilities Index Scores: Evidence from Hip Fracture." International Journal of Technology Assessment in Health Care, Vol. 21, No. 3, 2005, pp 1-6, in press. [HUI2; HUI3; Test-Retest Reliability]

Kaplan, Mark S., Jean-Marie Berthelot, David H. Feeny, Bentson H. McFarland, and Saeeda Khan, "The Predictive Validity of Two Measures of Health-Related Quality of Life: Mortality in a Longitudinal Population-Based Study," Quality of Life Research, Vol. 16, No. 9, November, 2007, pp 1539-1546. [HUI3; Construct Validity; Predictive Validity][Canada, Population Health (an update)]

Kaplan, Robert M., Erik J. Groessl, Nishan Sengupta, William J. Sieber, Theodore G. Ganiats, "Comparison of Measured Utility Scores and Imputed Scores From the SF-36 in Patients With Rheumatoid Arthritis." Med Care, Vol. 43, No. 1, January 2005, pp 79-87.[HUI2, HUI3, Scoring, Copnstruct Validity, Responsiveness][USA, Rheumatoid Arthritis]

Keeney, Ralph L., "A Group Preference Axiomatization with Cardinal Utility." Management Science, Vol. 22, No. 2, October, 1976, pp 140-145. [Scoring; Theory]

Keeney, Ralph L., "Building Models of Values." European Journal of Operational Research, Vol. 37, 1988, pp 149-157. [Scoring; Theory]

Keeney, Ralph L., and Howard Raiffa. Decisions with Multiple Objectives: Preferences and Value Tradeoffs. New York: Cambridge University Press, 1993. First Edition: John Wiley & Sons, 1976. [Scoring; Theory]

Keren, Ron, Susmita Pati, and Chris Feudtner, "The Generation Gap: Differences Between Children and Adults Pertinent to Economic Evaluation of Health Interventions." Pharmacoeconomics, Vol. 22, No. 2, 2004, pp 71-81. [HUI2, HUI3]

Koomen, Irene, Hein Raat, Aag Jennekens-Schinkel, Diederick E. Grobbee, John J. Roord, and Marceline van Furth, "Academic and Behavioral Limitations and Health-Related Quality of Life in School-Age Survivors of Bacterial Meningitis." Quality of Life Research, Vol. 14, No. 6, August, 2005, pp 1563-1572. [HUI2; HUI3; Construct Validity][Netherlands, pediatrics]

Kopec, Jacek A., and Kevin D. Willison, "A Comparative Review of Four Preference-Weighted Measures of Health-Related Quality of Life." Journal of Clinical Epidemiology, Vol. 56, No. 4, April, 2003, pp 317-325. [HUI3; Review Article]

Kopec J., Schultz S., Goel V., Williams J. "Can the Health Utilities Index measure change?" Med Care, Vol. 39 (6), 2001, pp 562-574. [HUI3, Validity][Canada, NPHS]

Lee, Todd A., William Hollingworth, and Sean D. Sullivan, "Comparison of Directly Elicited Preferences Derived from the SF-36 in Adults with Asthma." Medical Decision Making, Vol. 23, No. 4, July-August, 2003, pp 323-334. [HUI2; Scoring][USA, asthma]

Le Galès, Catherine, Catherine Buron, Nathalie Coster, Françoise Kinkor, David Feeny, William Furlong, Judy Chwalow, and Pr. Gérard Slama, "Assessment of the Multi-Attribute Preference Function for Health Utilities Index 3 in France: Preliminary Results." Quality of Life Research, Vol. 6, No. 7/8, October/December, 1997, p 678 (Abstract). [Cross-Cultural Validation; Scoring][France]

Le Galès Catherine, Catherine Buron, Nathalie Costet, Sophia Rosman, Pr. Gérard Slama, "Developpement d'un index d'etats de sante pondere par les utilites en population francaise: le Health Utilities Index." Economie et Prevision (in Press). [Cross-Cultural Validation; Scoring][France]

Le Galès Catherine, Catherine Buron, Nathalie Costet, Sophia Rosman, and Pr. Gérard Slama, "Development of a Preference-Weighted Health Status Classification System in France: the Health Utilities Index." Health Care and Management Science, Vol 5(1), 2002, pp 41-52. [HUI3; Cross-Cultural Validation; Scoring][France]

Le Galès, Catherine, Catherine Buron, Nathalie Costet, Sophia Rosman, and Gérard Slama, "The French Health Utilities Index Mark 3." Value and Health, Vol. 3, No. 2, March/April, 2000, p 103 (Abstract). [Cross-Cultural Validation; Scoring]

Lobo, Francis S., Cynthia R. Gross, and Barbara J. Matthees, "Estimation and Comparison of Dervied Preference Scores from SF-36 in Lung Transplant Patients." Quality of Life Research, Vol. 13, No. 2, March, 2004, pp 377-388. [HUI2; Construct Validity; Scoring]

Lubetkin, Erica I., and Marthe R. Gold, "Areas of Decrement in Health-Related Quality of Life (HRQL): Comparing the SF-12, EQ-5D, and HUI3." Quality of Life Research, Vol. 12, No. 8, December, 2003, pp 1059-1067. [HUI3; Construct Validity][USA]

Lubetkin, Erica I., and Marthe R. Gold, "Comprehensibility of Measures of Health-Related Quality of Life in Minority and Low-Income Patients." Journal of the National Medical Association, Vol. 94, No. 5, May 2002, pp 327-335. [HUI3, Construct Validity, Routine Use][USA]

Luce, R. Duncan, and Howard Raiffa, Games and Decisions: Introduction and Critical Survey. New York, John Wiley & Sons, Inc., 1957. [Theory]

Luo, Nan, Boon-Kheng Seng, Julian Thumboo, David Feeny, and Shu-Chuen Li, "A Study of the Construct Validity of the Health Utilities Index Mark 3 (HUI3) in Patients with Schizophrenia," Quality of Life Research, Vol 15, No. 5, June 2006, pp 889-898. [HUI3; Construct Validity][Singapore, mental health]

Luo, Nan, Ling-Huo Chew, Kok-Yong Fong, Dow-Rhoon Koh, See-Cheng Ng, Kam-Hon Yoon, Sheila Vasoo, Shu-Chuen Li, and Julian Thumboo, "A Comparison of the EuroQol-5D and the Health Utilities Index Mark 3 in Patients with Rheumatic Disease." Journal of Rheumatology, Vol. 30, No. 10, October, 2003, pp 2268-2274. [HUI3; Construct Validity]

Maddigan, Sheri L., Sumit R. Majumdar, and Jeffrey A. Johnson, "Understanding the Complex Associations Between Patient-Provider Relationships, Self-Care Behaviours, and Health-Related Quality of Life in Type-2 Diabetes: A Structural Equation Modeling Approach." Quality of Life Research, Vol. 14, No. 6, August, 2005, pp 1489-1500. [HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, "Health Related Quality of Life Deficits Associated with Diabetes and Comorbidities in a Canadian National Population Health Survey." Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1311-1320. [HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, "Construct Validity of the RAND- 12 and Health Utilities Index Mark 2 and 3 in Type 2 Diabetes." Quality of Life Research, Vol. 23, No. 2, March, 2004, pp 435-448. [HUI2; HUI3; Construct validity][Canada, diabetes]

Maddigan, Sheri L., Sumit R. Majumdar, Ellen L. Toth, David H. Feeny, and Jeffrey A. Johnson, "Health-Related Quality of Life Deficits Associated with Varying Degrees of Disease Severity in Type 2 Diabetes." Health and Quality of Life Outcomes (electronic journal) (Vol 1: 78, December 15, 2003), www.hqlo.com/content/1/1/78 [HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, "A Comparison of the Health Utilities Indices Mark 2 and Mark 3 in Type 2 Diabetes." Medical Decision Making, Vol. 23, No. 6, November-December, 2003, pp 489-501. [HUI2; HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., David H. Feeny, Sumit R. Majumdar, Karen B. Farris, and Jeffrey A. Johnson, "Health Utilities Index Mark 3 Demonstrated Construct Validity in a Population-Based Sample with Type 2 Diabetes." Journal of Clinical Epidemiology, 2005, forthcoming. [HUI3; Construct Validity]

Marra, Carole A., Amir R. Rashidi, Daphne Guy, Jacek A. Kopec, Michal Abrahamowicz, John M. Esdaile, John E. Brazier, Paul R. Fortin, and Aslam H. Anis, "Are Indirect Utility Measures Reliable and Responsive in Rheumatoid Arthritis Patients?" Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1333-1344. [HUI3; Construct Validity; Test-Retest Reliability; Responsiveness][Canada, arthritis]

Marra, Carlo A., John C. Woolcott, Jacek A. Kopec, Kamran Shojania, Robert Offer, John E. Brazier, John M. Esdaile, and Aslam H. Anis, "A Comparison of Generic, Indirect Utility Measures (the HUI2, HUI3, SF-6D, and the EQ-5D) and Disease-specific Instruments (the RAQoL and the HAQ) in Rheumatoid Arthritis." Social Science & Medicine, Vol. 60, No. 7, April, 2005, pp 1571-1582. [HUI2; HUI3; Construct Validity; Interpretability; Responsiveness][Canada, Rheumatoid Arthritis]

Marra, Carlo A., John M. Esdaile, Daphne Guh, Jacek A. Kopec, John E. Brazier, Barry E. Koehler, Andrew Chalmers, and Aslam H. Anis, "A Comparison of Four Indirect Methods of Assessing Utility Values in Rheumatoid Arthritis." Medical Care, Vol. 42, No. 11, November, 2004, pp 1125-1131. [HUI2; HUI3; Construct Validity][Rheumatoid Arthritis]

Mathias, Susan D., Molly M. Bates, David J. Pasta, Miriam G. Cisternas, David Feeny, and Donald L. Patrick, "Use of the Health Utilities Index with Stroke Patients and their Caregivers." Stroke, Vol. 28, No. 10, October, 1997, pp 1888-1894. [Construct Validity; Reliability][USA, Alzheimer]

McCabe, Christopher, Katherine Stevens, Jennifer Roberts, and John Brazier, "Health State Values for the HUI2 Descriptive System: Results from a UK Survey." Health Economics, Vol. 14, No. 3, March, 2005, pp 231-244. [HUI2; Scoring; United Kingdom preferences]

McCabe, Christopher J., Katherine J. Stevens, and John E. Brazier, "Utility Scores for Health Utilities Index Mark 2: An Empirical Assessment of Alternative Mapping Functions." Medical Care, Vol. 43, No. 6, June 2005, pp 627-635. [HUI2; Scoring; United Kingdom preferences]

McDonough, Christine M., Margaret R. Grove, Tor D. Tosteson, Jon D. Lurie, Alan S. Hilbrand, and Anna N. A. Tosteson, "Comparison of EQ-5D, HUI, and SF-36 Derived Societal Health- State Values among Spine Patient Outcomes Research Trial (SPORT) Participants." Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1321-1332. [HUI2; HUI3; Construct Validity][USA, Spine]

Moy, Marilyn L., Anne L. Fuhlbrigge, Karen Blumenschein, Richard H. Chapman, Alan J. Zillich, Karen M. Kuntz, A. David Paltiel, Barrett T. Kitch, Scott T. Weiss, and Peter J. Neumann, "Association Between Preference-based Health-Related Quality of Life and Asthma Severity." Annals of Allergy, Asthma, and Immunology, Vol. 92, No. 9, March, 2004, pp 329- 334. [HUI3; asthma; construct validity][USA, asthma]

Mrus, Joseph M., Michael S. Yi, Kenneth A. Freedberg, Albert W. Wu, Robert Zachin, Heather Gorski, and Joel Tsevat, "Utilities Derived from Visual Analog Scale Scores in Patients with HIV/AIDS." Medical Decision Making, Vol. 23, No. 5, September-October, 2003, pp 414-421. [HUI2; Construct Validity]

Naeim, Arash, Emmett B. Keeler, and Carol M. Mangione, "Options for Handling Missing Data in the Health Utilities Index Mark 3." Medical Decision Making, Vol. 25, No. 2, March-April, 2005, pp 186-198. [HUI3; Missing Data][USA, cataract]

Naglie, Gary, George Tomlinson, Catherine Tansey, Jane Irvine, Paul Ritvo, Sandra E. Black, Morris Freedman, Michel Silberfeld, and Murray Krahn, "Utility-Based Quality of Life Measures in Alzheimer's Disease." Quality of Life Research, Vol. 15, No. 4, May, 2006, pp 631-643. [HUI3; Construct Validity; Inter-Rater Reliability; Test-Retest Reliability][Canada, Alzheimer]

Nathan, Paul C., William Furlong, John Horsman, Charmaine van Schaik, Martha Rolland, Sheila Weitzman, David Feeny, and Ronald D. Barr, "Inter-Observer Agreement of a Comprehensive Health Status Classification System for Pre-School Children among Patients with Wilms' Tumor or Advanced Neuroblastoma." Quality of Life Research, Vol. 13, No. 10, December 2004, pp 1707-1715. [Reliability; Construct Validity; Pediatric Oncology][Canada, Cancer in childhood]

Nathan, Paul C., William Furlong, Sonja DePauw, John Horsman, Charmaine van Schaik, Martha Rolland, Sheila Weitzman, David Feeny, and Ronald D. Barr, "Health Status of Young Children during Various Phases of Therapy for Advanced Neuroblastoma." Pediatric Blood and Cancer, Vol. Vol. 43, No. 6, November, 2004, pp 659-667. [CHSCS-PS; Reliability; Construct Validity; Pediatric Oncology][Canada, Cancer in childhood]

Nathan, Paul C., William Furlong, and Ronald D. Barr, "Challenges to the Measurement of Health-Related Quality of Life in Children Receiving Cancer Therapy." Pediatric Blood and Cancer, Vol. 43, No. 3, September, 2004, pp 215-223. [Clinical][Canada, pediatric oncology]

Neumann, Peter J., Karen M. Kuntz, Joel Leon, Sally S. Araki, Richard C. Hermann, Ming Ann Hsu, and Milton C. Weinstein, "Health Utilities and Health Status in Alzheimer's Disease: A Cross-Sectional Study of Subjects and Caregivers." Medical Care, Vol. 37, No. 1, January, 1999, pp 27-32. [Construct Validity]

Neumann, Peter J., Eileen A. Sandberg, Sally S. Araki, Karen M. Kuntz, David Feeny, and Milton C. Weinstein, "A Comparison of HUI2 and HUI3 Utility Scores in Alzheimer's Disease", Medical Decision Making, Vol. 20, No. 4, October-December, 2000, pp 413-422. [Construct Validity; Scoring][USA; Alzheimer Disease]

Nichol, Graham, George Arthur Wells, Karen Kuntz, David Feeny, Will Longstreth, Brian Mahoney, Clay Mann, Ray Lucas, Mark Henry, Ella Huszti, and Alice Birnbaum, "Methodological Design for Economic Evaluation in Public Access Defibrillation (PAD) Trial." American Heart Journal, Vol. 150, No. 2, August, 2005, pp 202-208. [HUI2; HUI3][Canada, USA, cardiac arrest]

Nichol, Michael B., Nishan Sengupta, and Denise R. Globe, "Evaluating Quality-Adjusted Life Years: Estimation of the Health Utility Index (HUI) from the SF-36." Medical Decision Making, Vol. 21, No. 2, March-April, 2001, pp 105-112. [HUI2; Construct Validity; Scoring][USA; Primary Care]

O'Brien, Bernie J., Marian Spath, Gordon Blackhouse, J. L. Severens, Paul Dorian, and John Brazier, "A View from the Bridge: Agreement Between the SF-6D Utility Algorithm and the Health Utilities Index." Health Economics, Vol. 12, No. 11, November, 2003, pp 975-981. [HUI3; scoring]

Oostenbrink, Rianne, Henriette A. Moll, and Marie-Louise Essink-Bot, "The EQ-5D and the Health Utilities Index for Permanent Sequelae after Meningitis: A Head-to-Head Comparison." Journal of Clinical Epidemiology, Vol. 55, No. 8, August, 2002, pp 791-799. [HUI2; HUI3; Construct Validity][The Netherlands, meningitis, pediatrics]

Patrick, Donald L., and Pennifer Erickson, Health Status and Health Policy: Quality of Life in Health Care Evaluation and Resource Allocation. New York: Oxford University Press, 1993. [Description of Systems]

Petrou,Stavros,"Methodological Issues Raised by Preference-Based Approaches to Measuring the Health Status of Children." Health Economics, Vol. 12, No. 8, August, 2003, pp 697-702. [HUI2; Construct Validitiy]

Pickard, A. Simon, Jeffrey A. Johnson, and David H. Feeny, "Responsiveness of Generic Health- Related Quality of Life Measures in Stroke." Quality of Life Research, 2004, in press. [HUI2; HUI3; Construct Validity; Responsiveness]

Pickard, A. Simon, Jeffrey A. Johnson, David H. Feeny, Ashfaq Shuaib, K. C. Carriere, and Abdul M. Nasser, "Agreement Between Patient and Proxy Assessments of Health-Related Quality of Life after Stroke using the EQ-5D and Health Utilities Index." Stroke, Vol. 35, No. 2, February 2004, pp 607-612. [HUI2; HUI3; Inter-rater Reliability][Canada, stroke]

Polsky, D., Keating, N.L., Weeks, J.C., and Schulman, K.A. "Patient choice of breast cancer treatment: impact on health state preferences." Medical Care, Vol. 40, No. 11, 2002, pp 1068-1079. [HUI3, breast cancer]

Quinn, Graham E., Velma Dobson, Saroj Saigal, Dale L. Phelps, Robert J. Hardy, Betty Tung, C. Gail Summers, Earl A. Palmer, CRYO-ROP Cooperative Group, "Health-Related Quality of Life at Age 10 Years in Very Low-Birth-Weight Children with and without Threshold Retinopathy of Prematurity." Archives of Ophthalmology, Vol. 122, No. 11, November, 2004, pp 1659-1666. [HUI3; Construct Validity][USA, vision, prematurity]

Raat, Hein, Gouke J. Bonsel, Marie-Louise Essik-Bot, Jeanne M. Landgraf, and Reinoud J. B. J. Gemke, "Reliability and Validity of Comprehensive Health Status Measures in Children: The Child Health Questionnaire in Relation to the Health Utilities Index." Journal of Clinical Epidemiology, Vol. 55, No. 1, January, 2002, pp 67-76. [HUI2, Reliability, Construct Validity]

Raat, Hein, Gouke Bonsel, Reinoud Gemke, Erik Verrips, Paul Krabbe, and Marie-Louise Essink-Bot, "Feasibility and Reliability of a Mailed Questionnaire to Obtain Visual Analogue Scale Valuations for Health States Defined by the Health Utilities Index Mark 3." Medical Care, Vol. 42, No. 1, January, 2004, pp 13-18. [HUI3, Generalizability, Scoring][Netherlands, pediatrics]

Raina, Parminder, Brenda Bonnett, David Waltner-Toews, Christel Woodward, and Tom Abernathy, "How Reliable are Selected Scales from Population-based Health Surveys? An Analysis Among Seniors." Canadian Journal of Public Health, Vol. 90, No. 1, January-February, 1999, pp 60-64. [Reliability of selected HUI3 items]

Rasanen, Pirjo, Eija Roine, Harri Sintonen, Virpi Semberg-Konttinen, Olli-Pekka Ryynanen, Risto Roine, "Use of Quality-Adjusted Life Years for the Estimation of Effectiveness of Health Care: A Systematic Literature Review." International Journal of Technology Assessment in Health Care, Vol. 22, No. 2, Spring, 2006, pp 235-241. [HUI2; HUI3; Review Article]

1. Revicki, Dennis A., David Feeny, Timothy L. Hunt, and Bernard Cole, "Analyzing Oncology Clinical Trials Data using the Q-TWiST Method: Clinical Importance and Sources for Health State Preference Data." Quality of Life Research, Vol. 15, No. 3, April, 2006, pp 411-423;
2. Richard Stephens, "Clinically Important Differences in Q-TWiST - One Twist Too Many?" Quality of Life Research, Vol. 15, No. 3, April, 2006, pp 425-426;
3. Revicki, Dennis A., David Feeny, Timothy L. Hunt, and Bernard Cole, "Clinically Important Differences in Q-TWiST - One TWiST Too Many, or TWiST and Shout?" Quality of Life Research, Vol. 15, No. 3, April, 2006, pp 427-428. [HUI2; HUI3; Interpretation]

Rizzo, John A., Steven Pashko, Rebecca Friedkin, John Mullahy, and Jody L. Sindelar, "Linking the Health Utilities Index to National Medical Expenditure Survey Data." PharmacoEconomics, Vol. 13, No. 5, Part 1, May, 1998, pp 531-541. [Construct Validity]

Rizzo, John A. and Jody L. Sindelar, "Linking Health-Related Quality-of-Life Indicators to Large National Data Sets." PharmacoEconomics, Vol. 16, No. 5, Part 1, November, 1999, pp 473-482. [Construct Validity]

Robertson CMT, Watt JM, Joffe AR, Murphy DB, Nagy JM, McLean DE, Pain KS, Saunders LD. "Childhood morbidity after severe traumatic brain injury: Increased detection with the Multiattribute Health Status Classification." Pediatr Crit Care Med, Vol. 2, No. 2, April, 2001, pp 145-150. [HUI2, Content Validity, Inter-rater Agreement] [Canada, Pediatrics, Brain Injury]

Ruiz, Miguel, Javier Rejas, Javier Soto, Antonio Pardo, and Irene Rebollo, "Adaptación y validación del Health Utilities Index Mark 3 al castellano y baremos de corrección en la población española." Medicina clinica (Barcelona), Vol. 120, No. 3, 2003, pp 89-96. [HUI3; Scoring; Generalizability][Spain]

Saigal, Saroj, Peter Rosenbaum, Barbara Stoskopf, Lorraine Hoult, William Furlong, David Feeny, and Ronald Hagan, "Development, Reliability and Validity of New Measure of Overall Health for Pre-School Children." Quality of Life Research, Vol. 14, No. 1, February, 2005, pp 243-257. [HUI2 and HUI3 for children under the age of 5][Canada, pediatrics]

Samsa, Greg, David Edelman, Margaret Rothman, G. Rhys Williams, Joseph Lipscomb, and David Matchar, "Determining Clinically Important Differences in Health Status Measures: A General Approach with Illustration Using the Health Utilities Index Mark II." PharmacoEconomics, Vol. 15, No. 2, February 15, 1999, pp 141-155. [Interpretability][USA, Stroke]

Schunemann, Holger J., Lauren Griffith, David Stubbing, Roger Goldstein, and Gordon H. Guyatt, "A Clinical Trial to Evaluate the Measurement Properties of 2 Direct Preference Instruments Administered with and without Hypothetical Marker States." Medical Decision Making, Vol. 23, No. 2, March-April, 2003, pp 140-149. [HUI3, Construct Validity, Responsiveness]

Sengupta, Nishan, Michael B. Nichol, Joanne Wu, and Denise Globe, "Mapping the SF-12 to the HUI3 and VAS in Managed Care Population." Medical Care, Vol. 42, No. 9, September, 2004, pp 927-937. [HUI3; Scoring]

Shimoda, Sandra, Beatriz de Camargo, John Horsman, William Furlong, Luiz Fernando Lopes, Adriana Seber, Ronald D. Barr, "Translation and cultural adaptation of Health Uilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with application to survivors of childhood cancer in Brazil." Quality of Life Research, Vol. 14, June, 2005, pp 1407-1412. [HUI2, HUI3, translation, reliability, validity][Brazil, childhood cancer]

Silberfeld, Michael, Sergio Rueda, Murray Krahn, and Gary Naglie, "Content Validity for Dementia of Three Generic Preference Based Health Related Quality of Life Instruments." Quality of Life Research, Vol. 11, No. 1, February, 2002, pp 71-79. [HUI2; HUI3; Content Validity][Canada; Dementia]

Speechley, Kathy Nixon, Elizabeth Maunsell, Marie Desmeules, Dena Schanzer, Jeanne Landgraf, David H. Feeny, and Maru E. Barrera, "Mutual Concurrent Validity of the Child Health Questionnaire and the Health Utilities Index: An Exploratory Analysis Using Survivors of Childhood Cancer." International Journal of Cancer, Supplement 12, December, 1999, pp 95-105. [Construct Validity][Canada, Childhood Cancers]

Stevens, Katherine, Christopher McCabe, John Brazier, and Jennifer Roberts, "Multi-attribute Utility Function or Statistical Inference Models: A Comparison of Health State Valuation Models using HUI2 Health State Classification System." Journal of Health Economics, Vol. 26, No. 5, September, 2007, pp 992-1002. [HUI2; Scoring Function]

Sun, Jian, "Adjusting Distributions of the Health Utilities Index Mark 3 Utility Scores of Health-Related Quality of Life." Quality of Life Research, Vol. 12, No. 1, February, 2003, pp 11-20. [HUI3; Construct Validity]

Supina, Alison L., David H. Feeny, Linda J. Carroll, and Jeffrey A. Johnson, "Misinterpretation with Norm-Based Scoring of Health Status in Adults with Type-1 Diabetes." Health and Quality of Life Outcomes (electronic journal) (Vol 4:15, March 16, 2006) http://www.hqlo.com/content/4/1/15 [HUI3; Construct Validity][Diabetes, Canada]

Thoma, Achilleas, Sheila Sprague, Karen Veltri, Eric Duku, and William Furlong, "Methodology and Measurement Properties of Health-Related Quality of Life Instruments: A Prospective Study of Patients Undergoing Breast Reduction Surgery." Health and Quality of Life Outcomes (electronic journal), Vol. 3, 44, July 22, 2005. http://www.hqlo.com/content/3/1/44. [HUI2; HUI3; Test-retest Reliability; Construct Validity; Responsiveness][Canada, breast reduction surgery]

Torrance, George W., William Furlong, and David Feeny, "Health Utility Estimation." Expert Reviews in Pharmacoeconomics Outcomes Research, Vol. 2, No. 2, 2002, pp 99-108. [Review Paper]

Torrance, George W., "Multiattribute Utility Theory as a Method of Measuring Social Preferences for Health States in Long-Term Care," in Robert L. Kane and Rosalie A. Kane, eds., Values and Long-Term Care. Lexington, MA: Lexington Books Division of D. C. Health, 1982, pp 127-156. [Description of Systems; Scoring; Theory]

Torrance, George W., Michael H. Boyle, Sargent P. Horwood, "Application of Multi-Attribute Utility Theory to Measure Social Preferences for Health States." Operations Research, Vol. 30, No. 6, November-December, 1982, pp 1042-1069. [Scoring; Theory][Canada]

Torrance, George W., William Furlong, David Feeny, and Michael Boyle, "Multi-Attribute Preference Functions: Health Utilities Index." PharmacoEconomics, Vol. 7, No. 6, June, 1995, pp 503-520. [Scoring; Theory][Canada]

Torrance, George W., Yueming Zhang, David Feeny, William Furlong, and Ronald Barr, "Multi-Attribute Preference Functions for A Comprehensive Health Status Classification System". McMaster University, Centre for Health Economics and Policy Analysis Working Paper No. 92-18, 1992. [Scoring; Theory][Canada]

Torrance, George W., David H. Feeny, William J. Furlong, Ronald D. Barr, Yueming Zhang, and Qinan Wang, "Multi-Attribute Preference Functions for A Comprehensive Health Status Classification System: Health Utilities Index Mark 2." Medical Care, Vol. 34, No. 7, July 1996, pp 702-722. [Scoring; Theory][Canada]

Torrance, George W., "Measurement of Health State Utilities for Economic Appraisal - A Review." Journal of Health Economics, Vol. 5, No. 1, 1986, pp 1-30. [Description of Systems; Scoring; Theory]

Torrance, George W., and David Feeny, "Utilities and Quality-Adjusted Life Years." International Journal of Technology Assessment in Health Care, Vol. 5, No. 4, 1989, pp 559-575. [Theory]

Torrance, George W., David Feeny, William Furlong, "Visual Analogue Scales: Do They Have a Role in the Measurement of Preferences for Health States?" Medical Decision Making, Vol. 21, No. 4, July-August, 2001, pp 329-334. [Scoring; Measurement; Theory]

Verrips, G.H.W., M.C. Stuifbergen, A. L den Ouden, G.J. Bonsel, R.J.B.J. Gemke, N. Paneth, and S.P. Verloove-Vanhorick, "Measuring Health Status Using the Health Utilities Index: Agreement Between Raters and Between Modalities of Administration." Journal of clinical Epidemiology, Vol. 54, No. 5, May, 2001, pp 475-481. [HUI3; Inter-rater Reliability; Inter-mode Reliability; Child Health][Netherlands]

von Neumann, John, and Oskar Morgenstern, Theory of Games and Economic Behavior. Princeton: Princeton University Press, 1944. [Theory]

Wang Q, Furlong W, Feeny D, Torrance G, Barr R. "How robust is the Health Utilities Index Mark 2 utility function?" Medical Decision Making, Vol. 22, No. 4, July/August, 2002, pp 350-358. [Reliability, Generalizability, Scoring].

Wee, Hwee-Lin, Yin-Bun Cheung, Wai-Chong Loke, Chee-Bank Tan, Mun-Hong Chow, Shu-Chuen Li, Kok-Yong Fong, David Feeny, David Machin, Nan Luo, and Julian Thumboo, "The Association of Body Mass Index with Health-Related Quality of Life: An Exploratory Study in a Multi-Ethnic Asian Population," Value in Health, forthcoming. [HUI3; Construct Validity][Singapore, Clinical and Population Health, obesity]

Wiebe, Samuel, Suzan Matijevic, Michael Eliasziw, and P. A. Derry, "Clinically Important Change in Quality of Life in Epilepsy." Journal of Neurology, Neurosurgery, and Psychiatry, Vol. 73, No. 2, August, 2002, pp 116-120. [HUI3; Interpretation; Responsiveness][Canada, epilepsy]

Wiebe, Samuel, Michael Eliasziw, and Suzan Matijevic, "Changes in Quality of Life in Epilepsy: How Large Must They Be to be Real?" Epilepsia, Vol. 42, No. 1, January, 2001, pp 113-118. [HUI3; Interpretation; Reliability; Responsiveness][Canada, epilepsy]

Wodchis, Walter P., Colleen J. Maxwell, Adriana Venturini, Jennifer D. Walker, Jenny Zhang, David B. Hogan, and David H. Feeny, "Study of Observed and Self-Reported HRQL in Older Frail Adults Found Group-Level Congruence and Individual-Level Differences." Journal of Clinical Epidemiology, Vol. 60, No. 5, May, 2007, pp 502-511. [HUI2; Construct Validity; Inter-rater Reliability]

Wodchis, Walter P., John P. Hirdes, and David H. Feeny, "A Health-Related Quality of Life Measure Based on the Minimum Data Set." International Journal of Technology Assessment in Health Care, forthcoming. [HUI2, Construct Validity] [Canada, Long-term Care]

Young, Nancy L., J. Ivan Williams, Karen K. Yoshida, and James G. Wright, "Measurement Properties of the Activities Scale for Kids." Journal of Clinical Epidemiology, Vol. 53, No. 2, February, 2000, pp 125-137. [HUI3; Construct Validity]

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Clinical and Evaluative Studies Using HUI [Clinical; Evaluative; Reliability; Responsiveness; Validity] (Listed alphabetically by 1st author)

Adachi, J. D., G. Ioannidis, L. Pickard, C. Berger, J. C. Prior, L. Joseph, D. A. Hanley, W. P. Olszynski, T. M. Murray, T. Anastassiades, W. Hopman, J. P. Brown, S. Kirland, C. Joyce, A. Papioannou, S. Poliquin, A. Tennenhouse, and E. A. Papadimitropoulos, "The Association Between Osteoporotic Fractures and Health-Related Quality of Life as Measured by the Health Utilities Index in the Canadian Multicentre Osteoporosis Study (CaMos)." Osteoporosis International, Vol. 14, No. 11, November, 2003, pp 895-904. [HUI2; HUI3; Construct Validity][Canada, osteoporosis]

Albertsen, Peter C., Robert F. Nease, and Arnold L. Potosky, "Assessment of Patient Preferences among Men with Prostate Cancer." Journal of Urology, Vol. 159, No. 1, January, 1998, pp 158-163. [Clinical][USA, Prostate Cancer]

Alessi, Daniela, Elisa Dama, Ronald Barr, Maria Luisa Mosso, Milena Maule, Corrado Magani, Guido Pastore, and Franco Merletti, "Health-Related Quality of Life of Long-term Childhood Cancer Survivors: A Population-based study from the Childhood Cancer Registry of Piedmont, Italy." European Journal of Cancer, 2007, in press.  [HUI3; Construct Validity][Italy, childhood cancer surivors]

Alexander, Michael, William Berger, Patricia Buchholz, John Walt, Caroline Burk, Jeff Lee, Rob Arbuckle, and Linda Abetz, "The Reliability, Validity, and Preliminary Responsiveness of the Eye Allergy Patient Impact Questionnaire (EAPIQ)." Health and Quality of Life Outcomes, Vol. 3, No. 67, October 31, 2005 (electronic journal) [http://www.hqlo.com/content/3/1/67 [HUI2; HUI3; Construct Validity][USA, Canada, eye allergy]

Asakawa, Keiko, Darryl Rolfson, Ambikaikapan Senthilselvan, David Feeny, and Jeffrey A. Johnson, "Health Utilities Index Mark 3 Showed Valid in Alzheimer Disease, Arthritis, and Cataracts." Journal of Clinical Epidemiology, 2007, in press. [HUI3; Construct Validity][Canada]

Avorn, Jerry, Josh Benner, Ian Ford, David A. Ganz, Allan Gaw, Robert J. Glynn, Joseph Jackson, A. Margot Lagaay, SebastianSchneeweiss, Thomas Walley, and Philip S. Wang, "Measuring the Cost-Effectiveness of Lipid-lowering Drugs in the Elderly: The Outcomes Research and Economic Analysis Components of the PROSPER Trial." Controlled Clinical Trials, Vol. 23, No. 6, December, 2002, pp 757-773. [HUI3][USA, Scotland, Ireland, heart disease]

Baladi, Jean-Francois, Devidas Menon, and Nicholas Otten, "An Economic Evaluation of Finasteride for Treatment of Benign Prostatic Hyperplasia." PharmacoEconomics, Vol. 9, No. 5, May, 1996, pp 443-454. [Evaluative][Canada]

Barr, Ronald D., and Alessandra Sala, "Quality-Adjusted Survival: A Rigorous Assessment of Cure after Cancer During Childhood and Adolescence." Pediatric Blood and Cancer, Vol. 44, No. 3, March, 2005, pp 201-204. [HUI2; HUI3; Review Article][pediatric oncology]

Barr, Ronald D., David Feeny, and William Furlong, "Economic Evaluation of Treatments for Cancer in Childhood." European Journal of Cancer, Vol. 40, No. 9, June, 2004, pp 1335-1344. [HUI2; HUI3][childhood cancer]

Barr, Ronald D., Julia Sek, John Horsman, William Furlong,, Mahassen Saleh, Mohan Pai, and Irwin Walker, "Health Status and Health-Related Quality of Life Associated with van Willebrand Disease." American Journal of Hematology, Vol. 73, No. 2, June 2003, pp 108-114. [HUI2; HUI3; Clinical; Construct Validity][Canada, von Willebrand disease]

Barr RD, Saleh M, Furlong W, Horsman J, Sek J, Pai M, Walker I. "Health status and health-related quality of life associated with hemophilia." Am J Hematology,Vol. 71, 2002, pp 152-160. [HUI2, HUI3, Construct Validity; Responsiveness][Canada, Hemophilia]

Barr, Ronald. D., A.Gonzalez, M. Longchong, W. Furlong, M. P. Vizcaino, J. Horsman, L. Fu, and L. Castillo, "Health Status and Health-Related Quality of Life in Survivors of Cancer in Childhood in Latin America: A MISPHO Feasibility Study." International Journal of Oncology, Vol. 19, No. 2, August, 2001, pp 413-421. [HUI2; HUI3; Clinical; Construct Validity]

Barr, Ronald D., Dawn Chalmers, Sonja DePauw, William Furlong, Sheila Weitzman, and David Feeny, "Health-Related Quality of Life in Survivors of Wilms' Tumor and Advanced Neuroblastoma: A Cross-Sectional Study." Journal of Clinical Oncology, Vol. 18, No. 18, September 15, 2000, pp 3280-3287. [HUI2; HUI3; Clinical; Construct-Validity][Canada; Wilms Tumor; Neuroblastoma]

Barr, Ronald D., William Furlong, Susan Dawson, Anthony C. Whitton, Ingrid Strautmanis, Mohan Pai, David Feeny, and George W. Torrance, "An Assessment of Global Health Status in Survivors of Acute Lymphoblastic Leukemia in Childhood." American Journal of Pediatric Hematology/Oncology, Vol. 15, No. 4, 1993, pp 284-290. [Clinical; Construct Validity][Canada, ALL]

Barr, Ronald D., William Furlong, Jennifer Henwood, David Feeny, John Wegener, Irwin Walker, and Michael Brain, "Economic Evaluation of Allogenic Bone Marrow Transplantation ? A Rudimentary Model to Generate Estimates for the Timely Formulation of Clinical Policy." Journal of Clinical Oncology, Vol. 14, No. 5, May, 1996, pp 1413-1420. [Clinical; Evaluative][Canada]

Barr, Ronald D., David Feeny, William Furlong, Sheila Weitzman, and George W. Torrance, "A Preference-Based Approach to Health-Related Quality of Life in Children with Cancer." International Journal of Pediatric Hematology/Oncology, Vol. 2, 1995, pp 305-315. [Clinical; Construct Validity][Canada]

Barr, Ronald D., Mohan K. R. Pai, Sheila Weitzman, David Feeny, William Furlong, Peter Rosenbaum, and George W. Torrance, " A Multi-Attribute Approach to Health Status Measurement and Clinical Management - Illustrated by an Application to Brain Tumors in Childhood." International Journal of Oncology, Vol. 4, 1994, pp 639-648. [Clinical; Construct Validity; Reliability][Canada, Pediatric, Brain Tumour]

Barr, Ronald D., Claire Petrie, William Furlong, Marilyn Rothney, and David Feeny, "Health-Related Quality of Life during Post-Induction Chemotherapy in Children with Acute Lymphoblastic Leukemia in Remission: An Influence of Corticosteroid Therapy." International Journal of Oncology, Vol. 11, 1997, pp 333-339. [Clinical; Construct Validity; Responsivness][Canada, Pediatric, ALL]

Barr, Ronald D., Toni Simpson, Anthony Whitton, Bonnie Rush, William Furlong, and David H. Feeny, "Health-Related Quality of Life in Survivors of Tumours of the Central Nervous System in Childhood - A Preference-Based Approach to Measurement in a Cross-Sectional Study." European Journal of Cancer, Vol. 35, No. 2, 1999, pp 248-255. [Clinical; Construct Validity; Cross-Cultural Validation][Canada, Pediatric, Brain Tumour]

Bartman, Barbara A., Mitchell J. Rosen, Douglas D. Bradham, Julie Weissman, Marc Hochberg, and Dennis A. Revicki, "Relationship Between Health Status and Utility Measures in Older Claudicants." Quality of Life Research, Vol. 7, No. 1, January, 1998, pp 67-73. [HUI2; Clinical; Construct Validity]

Barton, Garry R., John Bankart, Adrian C. Davis, and Quentin A. Summerfield, "Comparing Utility Scores Before and After Hearing-Aid Provision: Results According to the EQ-5D, HUI3, and SF-6D." Applied Health Economics and Health Policy, Vol. 3, No. 2, 2004, pp 103-105. [HUI3; Construct Validity; Responsiveness]

Barton, Garry R., John Bankart, and Adrian C. Davis, "A Comparison of the Quality of Life of Hearing-Impaired People as Estimated by Three Different Utility Measures." International Journal of Audiology, Vol. 44, No. 3, March, 2005, pp 157-163. [HUI3; Construct Validity]

Bayoumi, Ahmed M., and Donald A. Redelmeir, "Economic Methods for Measuring the Quality of Life Associated with HIV Infection." Quality of Life Research, Vol. 8, No. 6, September, 1999, pp 471-480. [Clinical; Construct Validity][Canada, AIDS]

Beaton, Dorcas E., Sheilah Hogg-Johnson, and Claire Bombardier, "Evaluating Changes in Health Status: Reliability and Responsiveness of Five Generic Health Status Measures in Workers with Musculoskeletal Disorder." Journal of Clinical Epidemiology, Vol. 50, No. 1, 1997, pp 79-93. [Clinical; Reliability; Responsiveness]

Bell, Chaim, Sally S. Araki, and Peter J. Neumann, "The Association Between Caregiver Burden and Carregiver Health-Related Quality of Life in Alzheimer Disease." Alzheimer Disease and Associated Disorders, Vol. 15, No. 3, July-September, 2001, pp 129-136. [HUI2; Construct Validity][USA, Alzheimer's disease]

Bennett, Kathryn J., George W. Torrance, Lea-Anne Moran, Frank Smith, and Charlie H. Goldsmith, "Health State Utilities in Knee Replacement Surgery: The Development and Evaluation of McKnee." Journal of Rheumatology, Vol. 24, No. 9, 1997, pp 1796-1805. [Clinical][USA, Total Knee Replacement]

Bichey, Bradford G., Jon M Hoversland, Michael K. Wynne, and Richard T. Miyamoto, "Changes in Quality of Life and the Cost-Utility Associated with Cochlear Implantation in Patients with Large Vestibular Aqueduct Syndrome." Otology & Neurotology, Vol. 23, May, 2002, pp 323-327. [HUI3; Construct Validity][USA, hearing]

Bier, Jo-Ann Blaymore, Anthony Prince, Michelle Tremont, and Michael Msall, "Medical, Functional, and Social Determinants of Health-Related Quality of Life in Individuals with Myelomeningocele." Developmental Medicine and Child Neurology, Vol. 47, No. 9, September, 2005, pp 609-612. [HUI2; Construct Validity][USA, pediatrics]

Billson, Amanda L. and David A. Walker. "Assessment of Health Status in Survivors of Cancer." Archives of Disease in Childhood, Vol. 70, No. 3 March 1994, pp 200-204. [Clinical; Construct Validity][United Kingdom, Pediatirc, Cancers]

Blanchard, Chris, David Feeny, Jeffrey L. Mahon, robert Bourne, Cecil Rorabeck, Larry Stitt, and susan Webster-Bogaert, "Is the Health Utilities Index Valid in Total Hip Arthroplasty Patients?," Quality of Life Research, Vol. 13, No. 2, March, 2004, pp 339-348. [HUI2; HUI3; Construct validity] [Canada, hip disease]

Blanchard, Chris, Isabelle C, and David Feeny, "Comparing Short Form and RAND Physical and Mental Health Summary Scores: Results from Total Hip Arthroplasty and High-Risk Primary-Care Patients," International Journal of Technology Assessment in Health Care, Vol. 19, No. 4, 2003, pp 1-7. [HUI3; Construct Validity][Canada, clinical, hip disease, osteoarthritis, total hip arthroplasty]

Blanchard, Chris, David Feeny, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and Susan Webster-Bogaert, "Is the Health Utilities Index Valid in Total Hip Arthroplasty Patients?," Quality of Life Research (2003), in press. [HUI2; HUI3; Construct Validity][Canada, osteoarthritis, total hip arthroplasty]

Blanchard, Chris, David Feeny, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and Susan Webster-Bogaert, "Is the Health Utilities Index Responsive in Total Hip Arthroplasty Patients,?" Journal of Clinical Epidemiology, Vol. 56, No. 11, November 2003, pp 1046-1054. [HUI2; HUI3; Construct Validity; Responsiveness][Canada, clinical, hip disease, osteoarthritis, total hip arthroplasty]

Bosch, Johanna L., Elkan f. Halpern, and G. Scott Gazelle, "Comparison of Preference-Based Utilities of the Short-Form 36 Health Survey and Health Utilities Index Before and After Treatment of Patients with Intermittent Claudication." Medical Decision Making, Vol. 22, No. 5, September-October 2002, pp 403-409. [HUI2, HUI3, Construct Validity; Responsiveness][Netherlands, Intermittent Claudication]

Bosch, Johanna L., Maria G. M. Hunink, "The Relationship Between Descriptive and Valuation Quality-of-Life Measures in Patients with Intermittent Claudication." Medical Decision Making, Vol. 16, No. 3, July-September, 1996, pp 217-225. [Clinical; Construct Validity][Netherlands, Peripheral Artery Disease]

Bosch, Johanna L. and M. G. Myriam Hunink, "Comparison of the Health Utilities Index Mark 3 (HUI3) and the EuroQol EQ-5D in Patients Treated for Intermittent Claudication." Quality of Life Research, Vol. 9, No. 6, 2001, pp 591-601. [Clinical; Construct Validity; Responsiveness] [The Netherlands][Peripheral vascular disease]

Bosch, Johanna L., Eric Tetteroo, Willem P. T. M. Mali, Maria G. M. Hunink, for the Dutch Iliac Stent Trial Group, "Iliac Arterial Occlusive Disease: Cost-Effectiveness Analysis of Stent Placement versus Percutaneous Transluminal Angioplasty." Radiology, Vol. 208, No. 3, September, 1988, pp 641-648. [Clinical; Construct Validity][Netherlands, Peripheral Artery Disease]

Bosch, Johanna L., Yolanda van der Graaf, Maria G. M. Hunink, for the Dutch Iliac Stent Trial Group, "Health-Related Quality of Life after Angioplasty and Stent Placement in Patients with Iliac Artery Occlusive Disease: Results from a Randomized Controlled Clinical Trial." Circulation, Vol. 99, No. 24, June 22, 1999, pp 3155-3160. [Clinical; Construct Validity][Netherlands, Peripheral Artery Disease]

Bosch, J. L., E. E. E. van Wijck, P. L. Baum, M. C. Donaldson, J. J. A. M. van den Dungen, and M. G. M. Hunink, "The McMaster Health Utility Index (II) and the EuroQol 5D Assessed in Patients with Peripheral Arterial Disease in the United States and the Netherlands." Medical Decision Making, Vol. 16, No. 4, October-December, 1996, p 450 (Abstract). [Clinical; Construct Validity][Netherlands, USA, Preipheral Artery Disease]

Boyle, Michael H., George W. Torrance, John C. Sinclair, and Sargent P. Horwood, "Economic Evaluation of Neonatal Intensive Care of Very-Low-Birth-Weight Infants." New England Journal of Medicine, Vol. 308, 1983, pp 1330-1337. [Clinical; Evaluative][Canada, Neonatal Intensive Care]

Brady, Bruce, Laura McAuley, and vijay K. Shukla, "Economic Evaluation of Zanamiriv for the Treatment of Influenza," Ottawa: Canadian Coordinating Office for Health Technology Assessment Technology, Report No. 13, January, 2001. [HUI3, Clinical][Canada, Influenza]

Brazier, John, Jennifer Roberts, Aki Tsuchiya, and Jan Busschbach, "A Comparison of the EQ-5D and SF-6D Across Seven Patient Groups." Health Economics, Vol. 13, No. 9, September, 2004, pp 873-884. [HUI3; Construct Validity; Responsiveness]

Brehaut, Jamie C., Dafna E. Kohen, Parminder Raina, Stephen D. Walter, Dianne J. Russell, Marilyn Swinton, Maureen O'Donnell, Peter Rosenbaum, "The Health of Primary Caregivers of Children With Cerebral Palsy: How Does It Compare With That of Other Canadian Caregivers?" Pediatrics, Vol. 114, 2004, pp 182-191. [HUI3; construct validity][Caregivers, Cerebral Palsy, Canada]

Brunner, H. I., D. Maker, B. Grundland, N. L. Young, V. Blanchette, A-M Stain, and B. M. Feldman, "Preference-Based Measurement of Health-Related of Life (HRQL) in Children with Chronic Musculoskeletal Disorders (MSKDs)." Medical Decision Making, Vol. 23, No. 4, July-August, 2003, pp 314-322. [HUI3; Clinical; Construct Validity][Canada, children, musculoskeletal disorders]

Cheng, André K., Haya R. Rubin, Neil R. Powe, Nancy K. Mellon, Howard W. Francis, and John K. Niparko, "Cost-Utility Analysis of the Coclear Implant in Children." Journal of the American Medical Association, Vol. 284. No. 7, August 16, 2000, pp 850-856. [HUI3, Clincal, Evaluative][USA, Children, Hearing]

Cheng, André K., and John K. Niparko, "Cost-Utility Analysis of the Coclear Implant in Adults." Archives of Otolaryngology--Head and Neck Surgery, Vol. 125. No. 11, November, 1999, pp 1214-1218-856. [HUI3, Clincal, Evaluative][USA, Adults, Hearing]

Ching, Shim, Achilles Thoma, Randi E. McCabe, and Martin M. Antony, "Measuring Outcomes in Aesthetic Surgery: A Comprehensive Review of the Literature." Plastic and Reconstructive Surgery, Vol. 111, January, 2003, pp 469-480. [HUI; Clinical][surgery]

Chong, Christopher A. K. Y., Anar gulamhussein, E. Jenny Heathcote, Les Lilly, Morris Sherman, Gary Naglie, and Murray Krahn, "Health-State Utilities and Quality of Life in Hepatitis C Patients." American Journal of Gastroenterlogy, Vol. 98, No. 3, March, 2003, pp630-638. [HUI3; Construct Validity][Canada, hepatitis]

Comerota, Anthony J. Richard C. Throm, Susan D. Mathias, Signe Hauhgton, and Mark Mewissen, "Catheter-Directed Thrombolysis for Iliofemoral Deep Vein Thrombosis Improves Health-Related Quality of Life." Journal of Vascular Surgery, Vol 32, No. 1, July, 2000, pp 130-137. [HUI2; Clinical; Evaluative]

Conner-Spady, Barbara, and Maria E. Suarez-Almazor, "Variation in the Estimation of Quality- Adjusted Life-Years by Different Preference-based Instruments." Medical Care, Vol. 41, No. 7, July, 2003, pp 791-801. [HUI3; Construct Validity; Responsiveness][Canada, musculoskeletal disease]

Cox, Cheryl L., Shelly Lensing, Shesh N. Rai, Pam Hinds, Elizabeth Burghen, and Ching-Hon Pui, "Proxy Assessment of Quality of Life in Pediatric Clinical Trials: Application of the Health Utilities Index 3." Quality of Life Research, Vol. 14, No. 4, May, 2005, pp 1045-1056. [HUI3; Reliability; Inter-Rater Reliability; Proxy Assessment][USA, childhood cancer]

Cranney, Ann, Douglas Coyle, Ba Pham, Jacqueline Tetroe, George Wells, Elaine Jolly, and Peter Tugwell, "The Psychometric Properties of Patient Preferences in Osteoporosis." Journal of Rheumatology, Vol. 28, No. 1, January, 2001, pp 132-137. [HUI2; Construct Validity]

De Civita, Mirella, Dean Reiger, Abul H. Alamgir, Aslam H. Anis, Mark J. FitzGerald, and Carlo A. Marra, "Evaluating Health-Related Quality-of-Life Studies in Paediatric Populations: Some Conceptual, Methodological Developmental Considerations and Recent Applications." Pharmacoeconomics, Vol. 23, No. 7, 2005, pp 659-685. [HUI2; HUI3; Review Article][pediatrics]

Degl'innocenti, Alessio, Gordon H. Guyatt, Ingela Wiklund, Diane Heels-Ansdell, David Armstrong, Carlo A. Fallone, Lisa Tanser, Sander Veldhuyzen van Zanten, Samer El-Dika, Naoki Chiba, Alan N. Barkun, Peggy Austin, and Holger J. Schunemann, "The Influence of Demographic Factors and Health-Related Quality of Life on Treatment Satisfaction in Patients with Gastroesophageal Reflux Disease Treated with Esomeprazole." Health and Quality of Life Outcomes (electronic journal), (Vol. 3: 4, January, 13, 2005), http://www.hqlo.com/content/3/1/4 [HUI3; Construct Validity]

de Keizer, N. F., G. J. Bonsel, and R. J. B. M. Gemke, "Health Status Prediction in Critically Ill Children: A Pilot Study Introducing Standardized Health Ratios." Quality of Life Research, Vol. 6, No. 2, March, 1997, 192-199. [Clinical; Predictive Validity][Netherlands, Pediatric]

Edelman, David, Rhys Williams, Margaret Rothman, and Gregory P. Samsa, "A Comparison of Three Health Status Measures in Primary Care Outpatients." Journal of General Internal Medicine, Vol. 14, No. 12, December, 1999, pp 759-762. [HUI2; Clinical; Construct Validity]

El-Dika, Samer, Gordon H. Guyatt, David Armstrong, Alessio Degl'innocenti, Ingela Wiklund, Carlo A. Fallone, Lisa Tanser, Sander Veldhuyzen van Zanten, Diane Heels-Ansdell, Peter Wahlqvist, and Holger J. Schunemann, "The Impact of Illness in Patients with Moderate to Severe Gastro-esophageal Reflux Disease." BMC Gastroenterology, Vol. 5, No. 23, July 10, 2005 (electronic journal) [http://www.biomedcentral.com/1471-230X/5/23] [HUI3; Construct Validity][Canada, gastroenterology]

Espallargues, Mireia, Carolyn J. Czoski-Murray, Nicholas J. Bansback, Jill Carlton, Grace M. Lewis, Lindsey A. Hughes, Christopher S. Brand, and John E. Brazier, "The Impact of Age- Related Macular Degenerationon Health Status Utility Values." Investigative Ophthalmology and Visual Science, Vol. 46, No. 11, November, 2005, pp 4016-4023. [HUI3; Construct Validity][UK, Vision]

Ettema, Teake P., Rose-Marie Droes, Jacomine de Lange, Gideon J. Mellenbergh, and Miel W. Ribbe, "A Review of Quality of Life Instruments Used in Dementia." Quality of Life Research, Vol. 14, No. 3, April, 2005, pp 675-686. [HUI2; HUI3; Review Article][mental health]

Feeny, David, Chris Blanchard, Jeffrey L. Mahon, Robert Bourne, Cecil Rorabeck, Larry Stitt, and Susan Webster-Bogaert, "Comparing Community-Preference Based and Direct Standard Gamble Utility Scores: Evidence from Elective Total Hip Arthroplasty." International Journal of Technology Assessment in Health Care, Vol. 19, No. 2, Spring, 2003, pp 362-372. [HUI2; HUI3; Scoring][Canada, osteoarthritis, total hip arthroplasty]

Feeny, David, William Furlong, Saroj Saigal, and Jian Sun,"Comparing Directly Measured Standard Gamble Scores to HUI2 and HUI3 Utility Scores: Group and Individual-Level Comparisons." Social Science & Medicine, Vol. 58, No. 4, February, 2004, pp 799-809. [HUI2; HUI3; Scoring]

Feeny, David H., Alison Leiper, Ronald D. Barr, William Furlong, George W. Torrance, Peter Rosenbaum, and Sheila Weitzman, "The Comprehensive Assessment of Health Status in Survivors of Childhood Cancer: Application to High-Risk Acute Lymphoblastic Leukaemia." British Journal of Cancer, Vol. 67, 1993, pp 1047-1052. [Clinical; Construct Validity][United Kingdom, Pediatric, ALL]

Feeny, David, William Furlong, Ronald D. Barr, George W. Torrance, Peter Rosenbaum, and Sheila Weitzman, "A Comprehensive Multiattribute System for Classifying the Health Status of Survivors of Childhood Cancer." Journal of Clinical Oncology, Vol. 10, No. 6, June, 1992, pp 923-928. [Clinical; Construct Validity][Canada, Pediatric, ALL, Wilms Tumour, Neuroblastoma]

Feeny, David, Lieling Wu, and Ken Eng, "Comparing Short Form 6D, Standard Gamble, and Health Utilities Index Mark 2 and Mark 3 Utility Scores: Results from Total Hip Arthroplasty Patients." Quality of Life Research, Vol. 13, No. 10, December 2004, pp 1659-1670. [HUI2; HUI3; Scoring][Canada, Osateoarthritis, Total Hip Arthroplasty]

Feeny, David, Karen Farris, Isabelle Côté, Jeffrey A. Johnson, Ross T. Tsuyuki, and Ken Eng, "A Cohort Study Found the RAND-12 and Health Utilities Mark 3 Demonstrated Construct Valiidity in High-Risk Primary-Care Patients." Journal of Clinical Epidemiology, Vol. 58, No. 2, 2005, pp 138-141. [HUI3; Construct Validity]

Feeny, David, "The Roles for Preference-Based Measures in Support of Cancer Research and Policy," Chapter 4 in Joseph Lipscomb, Carolyn Cook Gotay, and Claire Snyder, eds., Outcomes Assessment in Cancer: Measures, Methods, and Applications, New York, Cambridge University Press, 2005, pp 69-92. [HUI2; HUI3; Review Article]

Felder-Puig, Rosemarie, E. Frey, G. Sonnleithner, David Feeny, H. Gadner, Ronald D. Barr, William Furlong, and Reinhard Topf, "German Cross-Cultural Adaptation of the Health Utilities Index and Its Application to a Sample of Childhood Cancer Survivors." European Journal of Pediatrics, Vol. 159, No. 4, April, 2000, pp 283-288. [Clinical; Cross-Cultural validation; Construct Validity; Reliability/Agreement][German/Austria; Childhood Cancer]

Fisk, J. D., M. G. Brown, I. S. Sketris, L. M. Metz, T. J. Murray, and K. J. Stadnyk, "A Comparison of Health Utility Measures for the Evaluation of Multiple Sclerosis Treatments." Journal of Neurology, Neurosurgery, and Psychiatry, Vol. 76, No. 1, January, 2005, pp 58-63. [HUI3; Construct Validity; Test-Retest Reliability][Canada, Multiple Sclerosis]

Foley, Robert N., Patrick S. Parfrey, Janet Morgan, Paul E. Barre, Patricia Campbell, Pierre Cartier, Douglas Coyle, Adrian Fine, Paul Handa, Iris Kingman, Cathy Y. Lau, Adera Levin, David Mendelssohn, Norman Muirhead, Brendan Murphy, Richard K. Plante, Gerald Posen, and George A. Wells, "Effect of Hemoglobin Levels in Hemodialysis Patients with Asymptomatic Cardiomyopathy." Kidney International, Vol. 58, No. 3, September, 2000, pp 1325-1335. [HUI2; Construct Validity; Responsiveness][Canada, end-stage renal disease]

Fontana, Robert J., Cheryl A. Moyer, Seema Sonnad, Anna S. F. Lok, Naomi Sneed-Pee, John Walsh, Steven Klein, and Steven Webster, "Comorbidities and Quality of Life in Patients with Interferon-Refractory Chronic Hepatitis C." American Journal of Gastroenterology, Vol. 96, No. 1, January, 2001, pp 170-178. [HUI3; Clinical; Construct Validity]

Forman-Hoffman, Valerie L., Caroline P. Carney, Tomoko R. Sampson, Paul M. Peloso, Robert F. Woolson, Donald W. Black, and Bradley N. Doebbeling, "Mental Health Comorbidity Patterns and Impact on Quality of Life among Veterans Serving during the First Gulf War." Quality of Life Research, Vol. 14, No. 10, December, 2005, pp 2303-2314. [HUI3; Construct Validity][mental health, USA]

Foreman, Nicholas K., Paul M. Faestel, Joanne Pearson, Jennifer Disabato, Marty Poole, Greta Wilkening, Edward B. Arenson, Brian Greffe, and Robert Thorne, "Health Status in 52 Long-Term Survivors of Pediatric Brain Tumors." Journal of Neuro-Oncology, Vol. 41, No. 1, January, 1999, pp 47-53. [Clinical; Construct Validity][USA, Pediatric, Brain Tumour]

Francis, Howard W., Nelson Chee, Jennifer Yeagle, Andre Cheng, and John K. Niparko, "Impact of Cochlear Implants on the Functional Health Status of Older Adults." The Laryngoscope, Vol.112, No. 8, Part 1, August, 2002, pp 1482-1488. [HUI3; Construct Validity; Responsiveness][USA, hearing]

Frey, E., R. Felder-Puig, G. Sonnleithner, R. Topf, and H. Gadner, "The Assessment of Health-Related Quality of Life in Survivors of Childhood Cancer: Our Experience with the Health Utilities Index Mark 2 + 3 (HUI2/3) in the After-Care Clinic," International Journal of Pediatric Hematology/Oncology, Vol. 6, No. 3, 1999, pp 214-216 (Abstract). [Clinical; Cross-Cultural Validation; Reliability/Agreement][Austria, Pediatric, Cancers]

Furlong, William, Ronald D. Barr, David Feeny, Susanne Yandow, "Patient-Focused Measures of Functional Health Status and Health-Related Quality of Life in Pediatric Orthopedics: A Case Study in Measurement Selection." Health and Quality of Life Outcomes (electronic journal) Vol.3:3,January 12,2005, http://www.hqlo.com/content/3/1/3. [HUI2; HUI3; CHSCS-PS][USA, Canada, pediatric orthopedics]

Gabriel, Sherine E., Terry S. Kneeland, L. Joseph Melton, III, Megan M. Moncur, Bruce Ettinger, and Anna N. A. Tosteson, "Health-Related Quality of Life in Economic Evaluations for Osteoporosis: Whose Values Should We Use?" Medical Decision Making, Vol. 19, No. 2, April-June, 1999, pp 141-148. [Clinical][USA, Adult, Osteoporosis]

Gemke, Reinoud J. B. J., and Gouke J. Bonsel, "Reliability and Validity of a Comprehensive Health Status Measure in a Heterogeneous Population of Children Admitted to Intensive Care." Journal of Clinical Epidemiology, Vol. 49, No. 3, March, 1996, pp 327-333. [Clinical; Construct Validity; Reliabilty][Netherlands, Pediatric, Intensive Care]

Gemke, Reinoud J. B. J., Gouke J. Bonsel, and A. Johannes van Vught, "Long Term Survival and State of Health after Paediatric Intensive Care." Archives of Disease in Childhood, Vol. 73, September, 1995, pp 196-201. [Clinical; Construct Validity][Netherlands, Pediatric, Intensive Care]

Glaser, Adam, Colin R. Kennedy, Jonathan Punt, and David Walker, "Standardized Quantitative Assessment of Brain Tumor Survivors Treated within Clinical Trials in Childhood." International Journal of Cancer, Supplement 12, December, 1999, pp 77-82. [Clinical; Construct Validity; Reliability][United Kingdom, Pediatric, Brain Tumour]

Glaser AW, N. F. Nik Abdul Rashid, U. Chin Lyn, and D. A. Walker, "School behaviour and health status after central nervous system tumours in childhood." British Journal of Cancer, Vol. 76, No. 5, 1997, pp 643-650. [Clinical; Construct Validity; Cross-Cultural Validation][United Kingdom, Pediatric, Brain Tumour]

Glaser AW, K. Davies, D. Walker, D. Brazier, "Influence of proxy respondents and mode of administration on health status assessment following central nervous system tumours in childhood." Quality of Life Research, Vol. 6, No. 1, January, 1997, pp. 43-53. [Clinical; Construct Validity; Cross-Cultural Validation; Reliability][United Kingdom, Pediatric, Brain Tumour]

Glaser, Adam W., William Furlong, David A. Walker, Katherine Fielding, K. Davies, David H. Feeny, and Ronald D. Barr, "Applicability of the Health Utilities Index to a Population of Childhood Cancer Survivors of Central Nervous System Tumours in the United Kingdom." European Journal of Cancer, Vol. 35, No. 2, 1999, pp. 256-261. [Clinical; Construct Validity; Cross-Cultural Validation; Reliability][United Kingdom, Pediatric, Brain Tumour]

Glick, Henry A., Daniel Polsky, Richard J. Willke, and Kevin A. Schulman, "A Comparison of Preference Assessment Instruments Used in a Clinical Trial: Responses to the Visual Analog Scale from the EuroQol EQ-5D and the Health Utilities Index." Medical Decision Making, Vol. 19, No. 3, July-September 1999, pp 265-275. [Clinical; Construct Validity][USA]

Gorodetskaya, Irina, Stefanos Zenois, Charles E. MuCulloch, Alan Bostrom, Chi-Yuan Hsu, Andrew, B. Bindman, Alan S. Go, and Glenn M. Chertow, "Health-Related Quality of Life and Estimates of Utility in Chronic Kidney Disease." Kidney International, Vol. 68, No. 6, December, 2005, pp 2801-2808. [HUI3; Construct Validity; Responsiveness][USA, chronic kidney disease]

Gortner, Susan R., Adelheid A. Jaeger, Judith Harr, and Terry Miller, "Elders' Expected and Realized Benefits from Cardiac Surgery." Cardiovascular Nursing, Vol. 30, No. 2, March/April 1994, pp 9-14. [Clinical; Evaluative][USA, Adult, Cardiac Surgery]

Grant, Richard W., Enrico Cagliero, Henry C. Chueh, and James B. Meigs, "Internet Use Among Primary Care Patients with Type 2 Diabetes: The Generation and Education Gap." Journal of General Internal Medicine, Vol. 20, No. 5, May, 2005, pp 470-473. [HUI2; Construct Validity][USA, diabetes]

Grant, J., A. Cranston, John Horsman, William Furlong, N. Barr, S. Findlay, and Ronald Barr, "Health Status and Health-Related Quality of Life in Adolescent Survivors of Cancer in Childhood." Journal of Adolescent Health, 2005, in press.

Grima, Daniel T., George W. Torrance, G. Francis, G. Rice, A.J. Rosner and L. LaFortune, "Cost and Health Related Quality of Life Consequences of Multiple Sclerosis." Multiple Sclerosis, Vol. 6, No. 2, April, 2000, pp 91-98. [Clinical; Construct Validity][Canada; Multiple Sclerosis]

Grootendorst, Paul, Deborah Marshall, Dan Pericak, Nicholas Bellamy, David Feeny, and George W. Torrance, “A Model to Estimate Health Utilities Index Mark 3 Utility Scores from WOMAC Index Scores in Patients with Osteoarthritis of the Knee.” Journal of Rheumatology, Vol. 34, No. 3, March, 2007, pp 534-542. [HUI3; Construct Validity]

Grossman, R., J. Mukherjee, D. Vaughan, C. Eastwood, R. Cook, J. LaForge, and N. Lampron, "A One-Year Community-Based Health Economic Study of Ciprofloxacin versus Usual Antibiotic Treatment in Acute Exacerbations of Chronic Bronchities." Chest, Vol. 113, 1998, pp 131-141. [Clinical; Evaluative][Canada, Bronchitis]

Hatoum, Hind T., John E. Brazier, and Kasem S. Akhras, "Comparison of the HUI3 with the SF- 36 Preference Based SF-6D in a Clinical Trial Setting." Value and Health, Vol. 7, No. 5, September, 2004, pp 602-609. [HUI3; Construct Validity; Responsiveness][Canada and USA, cardiovascular]

Hays, Ron D., Jo-Ann Eastwood, Jenny Kotlerman, Karen L. Spritzer, Susan L. Ettner, and Marie Cowan, "Health-Related Quality of Life and Patient Reports About Care Outcomes in a Multidisciplinary Hospital Intervention." Annals of Behavioral Medicine, Vol. 31, No. 2, April, 2006, pp 173-178. [HUI3; Construct Validity; Responsiveness][USA]

Heidenheim, A. Paul, Norman Muirhead, Louise Moist, and Robert M. Lindsay, "Patient Quality of Life on Quotidian Hemodialysis." American Journal of Kidney Disease, Vol. 42, No. 1 (Supplement), July, 2003, pp S36-S41. [HUI3; Responsivness][Canada, end-stage renal disease]

Hickey, Anne, Maja Barker, Hannah McGee, and Ciaran O'Boyle, "Measuring Health-Related Quality of Life in Older Patient Populations. A Review of Current Approaches." Pharmacoeconomics, Vol. 23, No. 10, 2005, pp 971-993. [HUI2; HUI3; Review Article]

Hinds, Pamela S, Elizabeth A. Burghen, Yinmei Zhou, Nancy West, Lisa Bashore, and Ching-

Hon Pui, "The Health Utilities Index 3 Invalidated When Completed by Nurses for Pediatric

Oncology Patients." Cancer Nursing, Vol. 30, No. 3, May-June 2007, pp 169-177. [HUI3; Inter-Rater Reliability][ALL, USA]

Hinds, Pamela S., J. S. Gattuso, A. Fletcher, E. Baker, B. Coleman, T. Jackson, A. Jacobs- Levine, D. June, S. N. Rai, S.Lensing, and C.-H. Pui, "Quality of Life as Conveyed by Pediatric Patients with Cancer." Quality of Life Research, Vol. 13, No. 4, May, 2004, pp 761-772. [HUI2; HUI3; Content Validity][USA, pediatric oncology]

Hung, Shih-Ying, A. Simon Pickard, Whitney P. Witt, and Bruce L. Lambert, "Pain and Depression in Caregivers Affected Their Perception of Pain in Stroke Patients." Journal of Clinical Epidemiology, Vol. 60, No. 9, September, 2007, pp 963-970. [HUI3; Construct Validity; Inter-Rater Reliability][Canada, stroke]

Hux, M., N. Milkovich, G. Torrance, and G. Sibbald, "Health-related quality of life related to chronic foot ulcers in diabetics." Quality of Life Research, 8, 1999 PP 655. (Abstract)[Clinical][Canada, Diabetes]

Janse, A. J., C. S. P. M. Uiterwall, R. J. B. J. Gemke, J. L. L. Kimpen, and G. Sinnema, "A Difference in Perception of Quality of Life in Chronically Ill Children Was Found Between Parents and Pediatricians." Journal of Clinical Epidemiology, Vol. 58, No. 5, May, 2005, pp 495- 502. [HUI3; Construct Validity; Reliability][Netherlands, child health]

Jayashree, M., S. C. Singhi, and P. Malhi, "Follow Up of Survival and Quality of Life in Children After Intensive Care." Indian Pediatrics, Vol. 40, No. 4, April 17, 2003, pp 303-309. [HUI2; Construct Validity]

Jones, C. Allyson, David Feeny, and Ken Eng, "Test-Retest Reliability of Health Utilities Index Scores: Evidence from Hip Fracture." International Journal of Technology Assessment in Health Care, Vol. 21, No. 3, August, 2005, pp 393-398. [HUI2; HUI3; Test-Retest Reliability][Canada, hip fracture]

Jones, C. Allyson, and David H. Feeny, "Agreement Between Patient and Proxy Responses on Health-Related Quality of Life After Hip Fracture." Journal of the American Geriatrics Society, Vol. 53, No. 7, July, 2005, pp 1227-1233. [HUI3; Inter-rater agreement, Reliability, construct validity][Canada, hip fracture]

Juniper, Elizabeth F., Gordon H. Guyatt, David H. Feeny, Lauren E. Griffith, and Penelope J. Ferrie, "Minimum Skills Required by Children to Complete Health-Related Quality of Life Instruments for Asthma: Comparison of Measurement Properties." European Respiratory Journal, Vol. 10, 1997, pp 2285-2294. [Clinical; Reliability; Responsiveness][Pediatric, Asthma]

Kamlet, M.S., Nancy Paul, Joel Greenhouse, David Kupfer, Ellen Frank, and Martcia Wade, "Cost utility analysis of maintenance treatment for recurrent depression." Controlled Clinical Trials, Vol. 16,1, 1995, pp 17-40. [HUI1, depression, cost utility]

Kanabar, D. J., S. Attard-Montalto, V. Saha, J. E. Kingston, J. E. Malpas, and O. B. Eden, "Quality of Life in Survivors of Childhood Cancer After Megatherapy with Autologous Bone Marrow Rescue." Pediatric Hematology and Oncology, Vol. 12, 1995, pp 29-36. [Construct Validity][United Kingdom, Pediatric, Bone Marrow Transplant]

Kaplan, Mark S., Jean-Marie Berthelot, David H. Feeny, Bentson H. McFarland, and Saeeda Khan, "The Predictive Validity of Two Measures of Health-Related Quality of Life: Mortality in a Longitudinal Population-Based Study," Quality of Life Research, Vol. 16, No. 9, November, 2007, pp 1539-1546. [HUI3; Construct Validity; Predictive Validity][Canada, Population Health (an update)]

Kaplan, Robert M., Erik J. Groessl, Nishan Sengupta, William J. Sieber, Theodore G. Ganiats, "Comparison of Measured Utility Scores and Imputed Scores From the SF-36 in Patients With Rheumatoid Arthritis." Med Care, Vol. 43, No. 1, January 2005, pp 79-87.[HUI2, HUI3, Scoring, Copnstruct Validity, Responsiveness][USA, Rheumatoid Arthritis]

Kennedy, Colin R., and Kathleen Leyland, "Comparison of Screening Instruments for Disability and Emotional/Behavioral Disorders with a Generic Measure of Health-Related Quality of Life in Survivors of Childhood Brain Tumors." International Journal of Cancer, Supplement 12, December, 1999, pp 106-111. [Clinical; Construct Validity; Discriminative Validity][United Kingdom, Pediatric, Brain Tumour]

Kennes, Janneke, Peter Rosenbaum, Steven E. Hanna, Stephen Walter, Dianne Russell, Parminder Raina, Doreen Bartlett, and Barbara Galuppi, "Health Status of School-Aged Children with Cerebral Palsy: Information from a Population-Based Sample." Developmental Medicine & Child Neurology, Vol. 44, No. 4, April, 2002, pp 240-247. [HUI3; Construct Validity][Canada, cerebral palsy]

Kiltie, Anne E., and H. Rao Gattamaneni, "Survival and Quality of Life of Paediatric Intracranial Germ Cell Tumour Patients Treated at the Christie Hospital, 1972-1993." Medical and Pediatric Oncology, Vol. 25, 1995, pp 450-456. [Construct Validity][United Kingdom, Pediatric, Brain Tumour]

Klassen, Anne F., Shoo K. Lee, Perminder Raina, Herbert W. P. Chan, Derek Matthew, and David Brabyn, "Health Status and Health-Related Quality of Life in a Population-Based Sample of Neonatal Intensive Care Graduates." Pediatrics, Vol. 113, No. 3, March, 2004, pp 594-600. [HSCS-PS; construct validity][child health, neonatal intensive care]

Klassen, Robert J., John J. Doyle, Murray D. Krahn, Victor S. Blanchette, and Gary Naglie, "Initial Bone Marrow Aspiration in Childhood Idiopathic Thrombocytopenia: Decision Analysis." Journal of Pediatric Hematology/Oncology, Vol 23, No. 8, November, 2001, pp 511-518. [HUI2; Decision Analysis]

Koomen, Irene, Hein Raat, Aag Jennekens-Schinkel, Diederick E. Grobbee, John J. Roord, and Marceline van Furth, "Academic and Behavioral Limitations and Health-Related Quality of Life in School-Age Survivors of Bacterial Meningitis." Quality of Life Research, Vol. 14, No. 6, August, 2005, pp 1563-1572. [HUI2; HUI3; Construct Validity][Netherlands, pediatrics]

Krabbe, Paul F. M., Johannes B. Hinderink, and Paul van den Broek, "The Effect of Cochlear Implant Use in Postlingually Deaf Adults." International Journal of Technology Assessment in Health Care, Vol. 16, Nol. 3, Summer, 2000, 864-873. [HUI2; Clinical Study; Construct Validity; Responsiveness]

Krahn, Murray, Paul Ritvo, Jane Irvine, George Tomlinson, Karen E. Bremner, Andrea Bezjak, John Trachtenberg, and Gary Naglie, "Patient and Community Preferences for Outcomes in Prostrate Cancer: Implications for Clinical Policy." Medical Care, Vol. 41, No. 1, January, 2003, 153-164. [HUI3; Clinical Study; Construct Validity]

Kroeker, Andrew, William F. Clark, A. Paul Heidenheim, Louise Kuenzig, Rosemarry Leitch, Michael Meyette, Norman Muirhead, Heather Ryan, Randy Welch, Sharon White, and Robert M. Lindsay, "An Operating Cost Comparison Between Conventional and Home Quotidian Hemodialysis." American Journal of Kidney Disease, Vol. 42, No. 1, Supplement 1, July, 2003, pp S49-S55. [HUI; Construct Validity][Canada, end-stage renal disease]

Lee, Todd A., William Hollingworth, and Sean D. Sullivan, "Comparison of Directly Elicited Preferences Derived from the SF-36 in Adults with Asthma." Medical Decision Making, Vol. 23, No. 4, July-August, 2003, pp 323-334. [HUI2; Scoring][USA, asthma]

Le Galès, Catherine, Nathalie Costet, Jean-Claude Gentet, Chantal Kalifa, Didier Frappaz, Christine Edan, Eric Sariban, Dominique Plantaz, and François Doz, "Cross-Cultural Adaptation of a Health Status Classification System in Children with Cancer. First Results of the French Adaptation of the Health Utilities Index Marks 2 and 3." International Journal of Cancer, Supplement 12, December, 1999, pp 112-118. [Clinical; Construct Validity; Cultural Adaptation; Reliability][France, Pediatric, Cancer]

Leidy, N.K., and C. Coughlin, "Psychometric Performance of the Asthma Quality of Life Questionnaire in a U.S. Sample." Quality of Life Research, Vol. 7, No. 2., February, 1998, pp 127-134. [Construct Validity][USA, Asthma]

Leidy, N.K., KS Chan, and C. Coughlin, "Is the Asthma Quality of Life Questionnaire a Useful Measure for Low-Income Asthmatics." American Journal of Respiratory and Critical Care Medicine, Vol. 158, No. 4, October, 1998, pp 1082-1090. [Construct Validity][USA, Asthma]

Lobo, Francis S., Cynthia R. Gross, and Barbara J. Matthees, "Estimation and Comparison of Dervied Preference Scores from SF-36 in Lung Transplant Patients." Quality of Life Research, Vol. 13, No. 2, March, 2004, pp 377-388. [HUI2; Construct Validity; Scoring]

Lubeck, Deborah P., "Patient-Reported Outcomes and Their Role in the Assessment of Rheumatoid Arthritis." Pharmacoeconomics, Vol. 22, Supplement 1, 2004, pp 27-38. [HUI3][rheumatoid arthritis]

Lubetkin, Erica I., and Marthe R. Gold, "Areas of Decrement in Health-Related Quality of Life (HRQL): Comparing the SF-12, EQ-5D, and HUI3." Quality of Life Research, Vol. 12, No. 8, December, 2003, pp 1059-1067. [HUI3; Construct Validity][USA]

Lubetkin, Erica I., and Marthe R. Gold, "Comprehensibility of Measures of Health-Related Quality of Life in Minority and Low-Income Patients." Journal of the National Medical Association, Vol. 94, No. 5, May 2002, pp 327-335. [HUI3, Construct Validity, Routine Use][USA]

Luo, Nan, Boon-Kheng Seng, Julian Thumboo, David Feeny, and Shu-Chuen Li, "A Study of the Construct Validity of the Health Utilities Index Mark 3 (HUI3) in Patients with Schizophrenia," Quality of Life Research, Vol 15, No. 5, June 2006, pp 889-898. [HUI3; Construct Validity][Singapore, mental health]

Luo, Nan, Ling-Huo Chew, Kok-Yong Fong, Dow-Rhoon Koh, See-Cheng Ng, Kam-Hon Yoon, Sheila Vasoo, Shu-Chuen Li, and Julian Thumboo, "A Comparison of the EuroQol-5D and the Health Utilities Index Mark 3 in Patients with Rheumatic Disease." Journal of Rheumatology, Vol. 30, No. 10, October, 2003, pp 2268-2274. [HUI3; Construct Validity]

Macran, Susan, Helen Weatherly, and Paul Kind, "Measuring Population Health: A Comparison of Three Generic Health Status Measures." Medical Care, Vol. 41, No. 2, February, 2003, pp 218-231. [modified non-standard version of HUI3; Construct Validity; Primary Care; Routine Use][UK]

Maddigan, Sheri L., Sumit R. Majumdar, and Jeffrey A. Johnson, "Understanding the Complex Associations Between Patient-Provider Relationships, Self-Care Behaviours, and Health-Related Quality of Life in Type-2 Diabetes: A Structural Equation Modeling Approach." Quality of Life Research, Vol. 14, No. 6, August, 2005, pp 1489-1500. [HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., Sumit R. Majumdar, Lisa M. Guirguis, Richard Z. Lewanczuk, T.K. Lee, Ellen L. Toth, Jeffrey A. Johnson, "Improvements in Patient-Reported Outcomes Associated with an Intervention to Enhance Quality of Care for Rural Patients with Type 2 Diabetes." Diabetes Care, Vol.27,6, June 2004, pp 1306-1312. [HUI3; construct validity; responsiveness][Canada, Diabetes]

Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, "Health Related Quality of Life Deficits Associated with Diabetes and Comorbidities in a Canadian National Population Health Survey." Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1311-1320. [HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, "Construct Validity of the RAND- 12 and Health Utilities Index Mark 2 and 3 in Type 2 Diabetes." Quality of Life Research, Vol. 23, No. 2, March, 2004, pp 435-448. [HUI2; HUI3; Construct validity][Canada, diabetes]

Maddigan, Sheri L., Sumit R. Majumdar, Ellen L. Toth, David H. Feeny, and Jeffrey A. Johnson, "Health-Related Quality of Life Deficits Associated with Varying Degrees of Disease Severity in Type 2 Diabetes." Health and Quality of Life Outcomes (electronic journal) (Vol 1: 78, December 15, 2003), www.hqlo.com/content/1/1/78 [HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, "A Comparison of the Health Utilities Indices Mark 2 and Mark 3 in Type 2 Diabetes." Medical Decision Making, Vol. 23, No. 6, November-December, 2003, pp 489-501. [HUI2; HUI3; Construct Validity][Canada, diabetes]

Mahon, Jeffrey L., Robert B. Bourne, Cecil H. Rorabeck, David H. Feeny, Larry Stitt, and Susan Webster-Bogaert, "Health-Related Quality of Life and Mobility in Patients Awaiting Elective Total Hip Arthroplasty: A Prospective Study." Canadian Medical Association Journal, Vol. 167, No. 10, November 12, 2002, pp 1115-1121. [HUI3; Construct Validity; Responsivness][Canada, Total Hip Arthroplasty, orthopedic surgery]

Malthaner, Richard A., and John D. Miller, "Lung Volume Reduction Surgery: Results from a Canadian Pilot Study." Canadian Journal of Surgery, Vol. 43, No. 5, October, 2000. [HUI3;Responsiveness][Canada, Surgery]

Marra, Carlo A., S. A. Marion, D. P. Guh, M. Najafzadeh, John M. Esdaile, A. E. Clarke, M. A.

Gignac, and Aslam H. Anis, "Not all Quality-Adjusted Life Years' Are Equal." Journal of

Clinical Epidemiology, Vol. 60, No. 6, June, 2007, pp 616-624. [HUI2; HUI3; Construct

Validity; Responsiveness, USA]

Marra, Carole A., Amir R. Rashidi, Daphne Guy, Jacek A. Kopec, Michal Abrahamowicz, John M. Esdaile, John E. Brazier, Paul R. Fortin, and Aslam H. Anis, "Are Indirect Utility Measures Reliable and Responsive in Rheumatoid Arthritis Patients?" Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1333-1344. [HUI3; Construct Validity; Test-Retest Reliability; Responsiveness][Canada, arthritis]

Marra, Carlo A., John C. Woolcott, Jacek A. Kopec, Kamran Shojania, Robert Offer, John E. Brazier, John M. Esdaile, and Aslam H. Anis, "A Comparison of Generic, Indirect Utility Measures (the HUI2, HUI3, SF-6D, and the EQ-5D) and Disease-specific Instruments (the RAQoL and the HAQ) in Rheumatoid Arthritis." Social Science & Medicine, Vol. 60, No. 7, April, 2005, pp 1571-1582. [HUI2; HUI3; Construct Validity; Interpretability; Responsiveness][Canada, Rheumatoid Arthritis]

Marra, Carlo A., John M. Esdaile, Daphne Guh, Jacek A. Kopec, John E. Brazier, Barry E. Koehler, Andrew Chalmers, and Aslam H. Anis, "A Comparison of Four Indirect Methods of Assessing Utility Values in Rheumatoid Arthritis." Medical Care, Vol. 42, No. 11, November, 2004, pp 1125-1131. [HUI2; HUI3; Construct Validity][Rheumatoid Arthritis]

Mathias, Susan D., Molly M. Bates, David J. Pasta, Miriam G. Cisternas, David Feeny, and Donald L. Patrick, "Use of the Health Utilities Index with Stroke Patients and their Caregivers." Stroke, Vol. 28, No. 10, October, 1997, pp 1888-1894. [Clinical; Construct Validity; Reliabiltty][USA, Stroke]

McDonough, Christine M., Margaret R. Grove, Tor D. Tosteson, Jon D. Lurie, Alan S. Hilbrand, and Anna N. A. Tosteson, "Comparison of EQ-5D, HUI, and SF-36 Derived Societal Health- State Values among Spine Patient Outcomes Research Trial (SPORT) Participants." Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1321-1332. [HUI2; HUI3; Construct Validity][USA, Spine]

McMahon, Pamela M., Sally S. Araki, Eileen A. Sandberg, Peter J. Neumann, and G. Scott Gazelle, "Cost-Effectiveness of PET in the Diagnosis of Alzheimer Disease." Radiology, Vol.228, No. 2, August, 2003, 515-522. [HUI2; HUI3; Construct Validity][USA. Alzheimer Disease]

McMahon, Pamela M., Sally S. Araki, Peter J. Neumann, Gordon J. Harris, and G. Scott Gazelle, "Cost-Effectiveness of Functional Imaging Tests in the Diagnosis of Alzheimer Disease." Radiology, Vol. 217, No. 1, October, 2000, pp 58-68. [HUI2; Clinical][USA, Alzheimer's disease]

Midgley, Deborah E., Tatum A. Bradlee, Christopher Donohoe, Kevin P. Kent, and Estella M. Alonso, "Health-Related Quality of Life in Long-Term Survivors of Pediatric Liver Transplantation." Liver Transplantation, Vol. 6, No. 3, May, 2000, pp 333-339. [HUI2, Clincal, Construct Validity][USA, Liver Transplantation, HUI2]

Mills, J. Michael, Estella M. Alonso, James B. Piper, David S. Bruce, Kenneth A. Newell, E. Steve Woodie, Alfred L. Baker, Peter F. Whitington, and J. Richard Thistlewaite, "Liver Transplantation at the University of Chicago," in J.M. Cecka and Paul I. Terasaki, eds., Clinical Transplants (Los Angeles, UCLA Tissue Typing Laboratory, 1995), 187-197. [Clinical][USA, Liver Transplant]

Moore, Andrew D., Ann E. Clarke, Deborah S. Danoff, Lawrence Joseph, Patrick Bélisle, Carolyn Neville, and Paul R. Fortin, "Can Health Utility Measures Be Used in Lupus Research? A Comparative Validation and Reliability Study of 4 Utility Indices." Journal of Rheumatology, Vol. 26, No. 6, June, 1999, pp 1285-1290. [Clinical; Construct Validity; Reliability] [Canada] [Lupus]

Moy, Marilyn L., Anne L. Fuhlbrigge, Karen Blumenschein, Richard H. Chapman, Alan J. Zillich, Karen M. Kuntz, A. David Paltiel, Barrett T. Kitch, Scott T. Weiss, and Peter J. Neumann, "Association Between Preference-based Health-Related Quality of Life and Asthma Severity." Annals of Allergy, Asthma, and Immunology, Vol. 92, No. 9, March, 2004, pp 329- 334. [HUI3; asthma; construct validity][USA, asthma]

Mulhern, Raymond K., "Correlation of the Health Utilities Index Mark 2 Cognition Scale and Neuropsychological Functioning among Survivors of Childhood Medulloblastoma." International Journal of Cancer, Supplement 12, December, 1999, pp 91-94. [Clinical; Construct Validity; Discriminative Validity][USA, Pediatric, Cancer]

Naglie, Gary, George Tomlinson, Catherine Tansey, Jane Irvine, Paul Ritvo, Sandra E. Black, Morris Freedman, Michel Silberfeld, and Murray Krahn, "Utility-Based Quality of Life Measures in Alzheimer's Disease." Quality of Life Research, Vol. 15, No. 4, May, 2006, pp 631-643. [HUI3; Construct Validity; Inter-Rater Reliability; Test-Retest Reliability][Canada, Alzheimer]

Nathan, Paul C., William Furlong, John Horsman, Charmaine van Schaik, Martha Rolland, Sheila Weitzman, David Feeny, and Ronald D. Barr, "Inter-Observer Agreement of a Comprehensive Health Status Classification System for Pre-School Children among Patients with Wilms' Tumor or Advanced Neuroblastoma." Quality of Life Research, Vol. 13, No. 10, December 2004, pp 1707-1715. [Reliability; Construct Validity; Pediatric Oncology][Canada, Cancer in childhood]

Nathan, Paul C., William Furlong, Sonja DePauw, John Horsman, Charmaine van Schaik, Martha Rolland, Sheila Weitzman, David Feeny, and Ronald D. Barr, "Health Status of Young Children during Various Phases of Therapy for Advanced Neuroblastoma." Pediatric Blood and Cancer, Vol. Vol. 43, No. 6, November, 2004, pp 659-667. [CHSCS-PS; Reliability; Construct Validity; Pediatric Oncology][Canada, Cancer in childhood]

Nathan, Paul C., William Furlong, and Ronald D. Barr, "Challenges to the Measurement of Health-Related Quality of Life in Children Receiving Cancer Therapy." Pediatric Blood and Cancer, Vol. 43, No. 3, September, 2004, pp 215-223. [Clinical][Canada, pediatric oncology]

Neumann, Peter J., Eileen A. Sandberg, Sally S. Araki, Karen M. Kuntz, David Feeny, and Milton C. Weinstein, "A Comparison of HUI2 and HUI3 Utility Scores in Alzheimer's Disease", Medical Decision Making, forthcoming. [Clinical; Construct Validity][USA; Alzheimer Disease]

Neumann, Peter J., Karen M. Kuntz, Joel Leon, Sally S. Araki, Richard C. Hermann, Ming Ann Hsu, and Milton C. Weinstein, "Health Utilities and Health Status in Alzheimer's Disease: A Cross-Sectional Study of Subjects and Caregivers." Medical Care, Vol. 37, No. 1, January, 1999, pp 27-32. [Clinical; Construct Validity][USA, Alzheimer Disease]

Neumann, P. J., R. C. Hermann, K. M. Kuntz, S. S. Araki, S. B. Duff, Leon J. Berenbaum, P. A. Goldman, L. W. Williams, and M. C. Weinstein, "Cost-Effectiveness of Donepezil in Treatment of Mild or Moderate Alzheimer's Disease." Neurology, Vol. 52, No. 6, April 12, 1999, 1138-1145. [Clinical; Evaluative][USA, Alzeimer Disease]

Nichol, Michael B., Nishan Sengupta, and Denise R. Globe, "Evaluating Quality-Adjusted Life Years: Estimation of the Health Utility Index (HUI) from the SF-36." Medical Decision Making, Vol. 21, No. 2, March-April, 2001, pp 105-112. [HUI2; Construct Validity; Scoring][USA; Primary Care]

Nichol, Graham, I. G. Stiell, P. Hebert, G. Wells, K. Vandemheen, and A. Laupacis, "What is the Quality of Life for Survivors of Cardiac Arrest? A Prospective Study." Academic Emergency Medicine, Vol. 6, No. 2, February, 1999, 95-102. [Clinical; Construct Validity; Evaluative][Canada, Cardiac Disease]

Odame Isaac, JoAnn Duckworth, Danielle Talsma, Lesley Beaumont, William Furlong, Colin Webber, and Ronald Barr, "Osteopenia, Physical Activity and Health-Related Quality of Life in Survivors of Brain Tumors Treated in Childhood." Pediatric Blood and Cancer, 2005, in press. [HUI2; HUI3; Construct Validity]

Oostenbrink, Rianne, Henriette A. Moll, and Marie-Louise Essink-Bot, "The EQ-5D and the Health Utilities Index for Permanent Sequelae after Meningitis: A Head-to-Head Comparison." Journal of Clinical Epidemiology, Vol. 55, No. 8, August, 2002, pp 791-799. [HUI2; HUI3; Construct Validity][The Netherlands, meningitis, pediatrics]

Oostenbrink, Rianne, Jan B. Oostenbrink, Karel G. Moons, Gerarad Derksen-Lubsen, Marie- Louise Essink-Bot, Diederick E. Grobbee, W. Ken Redekip, and Henriette A. Moll, "Cost- Utility Analysis of Patient Care in Children with Meningeal Signs." International Journal of Technology Assessment in Health Care, Vol. 18, No. 3, Summer, 2002, 485-496. [HUI3; Construct Validity][The Netherlands, meningitis, pediatrics]

Palmer, Cynthia S., John K. Niparko, Robert Wyatt, Margaret Rothman, and Gregory de Lissovoy, "A Prospective Study of the Cost-Utility of the Multichannel Cochlear Implant." Archives of Otolaryngology--Head and Neck Surgery, Vol. 125, No. 11, November, 1999, pp 1221-1228. [HUI2, Clinical, Evaluative][USA, Adults, Hearing]

Pickard, A. Simon, Jeffrey A. Johnson, and David H. Feeny, "Responsiveness of Generic Health- Related Quality of Life Measures in Stroke." Quality of Life Research, 2004, in press. [HUI2; HUI3; Construct Validity; Responsiveness]

Pickard, A. Simon, Jeffrey A. Johnson, David H. Feeny, Ashfaq Shuaib, K. C. Carriere, and Abdul M. Nasser, "Agreement Between Patient and Proxy Assessments of Health-Related Quality of Life after Stroke using the EQ-5D and Health Utilities Index." Stroke, Vol. 35, No. 2, February 2004, pp 607-612. [HUI2; HUI3; Inter-rater Reliability][Canada, stroke]

Pogany, Lisa, Ronald D. Barr, Amanda Shaw, Kathy N. Speechley, Maru Barrera, and Elizabeth Maunsell, "Health Status in Survivors of Cancer in Childhood and Adolescence." Quality of Life Research, Vol. 15, No. 1, February, 2006, pp 143-157. [HUI3; Construct Validity][pediatric oncology]

Pohar, Sheri L., C. Allyson Jones, Sharon Warren, Karen V. L. Turpin, and Kenneth Warren,

"Health Status and Health Care Utilization of Multiple Sclerosis in Canada." Canadian Journal

of Neurological Sciences, Vol. 34, No. 2, May, 2007, pp 167-174. [HUI3; Construct Validity]

Polsky, D., Keating, N.L., Weeks, J.C., and Schulman, K.A. "Patient choice of breast cancer treatment: impact on health state preferences." Medical Care, Vol. 40, No. 11, 2002, pp 1068-1079. [HUI3, Clinical, Construct Validity, Responsiveness][USA, breast cancer]

Post, Piet N., Anne M. Stiggelbout, and Peter P. Wakker, "The Utiity of Health States after Stroke: A Systematic Review of the Literature." Stroke, Vol. 32, No. 6, June, 2001, pp 1425-1429. [HUI2; HUI3; Construct Validity; Review Article]

Quinn, Graham E., Velma Dobson, Saroj Saigal, Dale L. Phelps, Robert J. Hardy, Betty Tung, C. Gail Summers, Earl A. Palmer, CRYO-ROP Cooperative Group, "Health-Related Quality of Life at Age 10 Years in Very Low-Birth-Weight Children with and without Threshold Retinopathy of Prematurity." Archives of Ophthalmology, Vol. 122, No. 11, November, 2004, pp 1659-1666. [HUI3; Construct Validity][USA, vision, prematurity]

Raat, Hein, Gouke J. Bonsel, Marie-Louise Essik-Bot, Jeanne M. Landgraf, and Reinoud J. B. J. Gemke, "Reliability and Validity of Comprehensive Health Status Measures in Children: The Child Health Questionnaire in Relation to the Health Utilities Index." Journal of Clinical Epidemiology, Vol. 55, No. 1, January, 2002, pp 67-76. [HUI2, Reliability, Construct Validity][Netherlands, pediatrics]

Raat, Hein, Gouke Bonsel, Reinoud Gemke, Erik Verrips, Paul Krabbe, and Marie-Louise Essink-Bot, "Feasibility and Reliability of a Mailed Questionnaire to Obtain Visual Analogue Scale Valuations for Health States Defined by the Health Utilities Index Mark 3." Medical Care, Vol. 42, No. 1, January, 2004, pp 13-18. [HUI3, Generalizability, Scoring][Netherlands, pediatrics]

Ramsey, Scott D., M. Robyn Andersen, Ruth Etzioni, Carol Moinpour, Sue Peacock, Arnold Potosky, and Nicole Urban, "Quality of Life in Survivors of Colorectal Carcinoma." Cancer, Vol. 88, No. 6, March 15, 2000, pp 1294-1303. [HUI3; Clinical; Construct Validity; Predictive Validity]

Raynauld, JP, GW Torrance, PA Band, CH Goldsmith, P Tugwell, V Walker, M Schultz, and N Bellamy, "A Prospective Randomized, Pragmatic, Health Outcomes Trial Evaluating the Incorporation of Hyland G-F 20 into the Treatment Paradigm for Patients with Knee Osteoarthritis (Part 1 of 2): Clinical Results." Osteoarthritis and Cartilage, Vol. 10, No. 7, 2002, pp 506-517. [HUI3, Construct Validity, Responsiveness][Canada, Knee Osteoarthritis][see Torrance et al below for Part 2 of 2 Economic Results]

1. Revicki, Dennis A., David Feeny, Timothy L. Hunt, and Bernard Cole, "Analyzing Oncology Clinical Trials Data using the Q-TWiST Method: Clinical Importance and Sources for Health State Preference Data." Quality of Life Research, Vol. 15, No. 3, April, 2006, pp 411-423;
2. Richard Stephens, "Clinically Important Differences in Q-TWiST - One Twist Too Many?" Quality of Life Research, Vol. 15, No. 3, April, 2006, pp 425-426;
3. Revicki, Dennis A., David Feeny, Timothy L. Hunt, and Bernard Cole, "Clinically Important Differences in Q-TWiST - One TWiST Too Many, or TWiST and Shout?" Quality of Life Research, Vol. 15, No. 3, April, 2006, pp 427-428. [HUI2; HUI3; Interpretation]

Revicki, Dennis A., N. K. Leidy, F. Brennan-Diemer, C. Thompson, and A. Togias, "Development and Preliminary Validation of the Multiattribute Rhinitis Symptom Utility Index." Quality of Life Research, Vol. 7, No. 8, December, 1998, 693-702. [Construct Validity][USA]

Revicki, Dennis A., K. N. Simpson, Albert W. Wu, and R. L. LaVallee, "Evaluating the Quality of Life Associated with Rifabutin Prophylaxis for Mycobacterium avium Complex in Persons with AIDS: Combining Q-Twist and Multiattribute Utility Techniques." Quality of Life Research, Vol. 4, No. 4, August, 1995, pp 309-318. [Clinical; Construct Validity; Evaluative][USA, AIDS]

Ritvo, Paul, Jane Irvine, Gary Naglie, George Tomlinson, Andrea Bezjak, Andrew Matthew, John Trachtenberg, and Murray Krahn, "Reliability and Validity of PORPUS, a combined Psychometric and Utility-based Quality-of-Life Instrument for Prostate Cancer." Journal of Clinical Epidemiology, Vol. 58, No. 5, May, 2005, pp 466-474. [HUI3; Construct Validity][Canada, prostate cancer]

Robertson CMT, Watt JM, Joffe AR, Murphy DB, Nagy JM, McLean DE, Pain KS, Saunders LD. "Childhood morbidity after severe traumatic brain injury: Increased detection with the Multiattribute Health Status Classification." Pediatr Crit Care Med, Vol. 2, No. 2, April, 2001, pp 145-150. [HUI2, Content Validity, Inter-rater Agreement] [Canada, Pediatrics, Brain Injury]

Rosner, Andrew J., Daniel T. Grima, George W. Torrance, Cathy Bradley, Jonathan D. Adachi, Rolf J. Sebaldt, and Donald J. Willison, "Cost Effectiveness of Multi-Therapy Treatment Strategies in the Prevention of Vertebral Fractures in Postmenopausal Women with Osteoporosis." PharmacoEconmics, Vol. 14, No. 5, November, 1998, pp 559-573. [Clinical; Evaluative][Canada, Adult, Osteoporosis]

Saigal, Saroj, Peter Rosenbaum, Barbara Stoskopf, Lorraine Hoult, William Furlong, David Feeny, and Ronald Hagan, "Development, Reliability and Validity of New Measure of Overall Health for Pre-School Children." Quality of Life Research, Vol. 14, No. 1, February, 2005, pp 243-257. [HUI2 and HUI3 for children under the age of 5][Canada, pediatrics]

Saigal, Saroj, David Feeny, Peter Rosenbaum, William Furlong, Elizabeth Burrows, Barbara Stoskopf, and Lorraine Hoult, "Self-Perceived Health Status and Health-Related Quality of Life of Extremely Low Birthweight Infants at Adolescence." Journal of the American Medical Association, Vol. 276, No. 6, August 14, 1996, pp 453-459. [Clinical; Construct Validity][Canada, Neo-natal Intensive Care]

Saigal, Saroj, Peter L. Rosenbaum, David Feeny, Elizabeth Burrows, William Furlong, Barbara L. Stoskopf, and Lorraine Hoult, "Parental Perspectives of the Health Status and Health-Related Quality of Life of Teen-Aged Children Who Were Extremely Low Birth Weight and Term Controls." Pediatrics, Vol. 105, No. 3, March, 2000, pp 569-574. [Clinical; Construct Validity]

Saigal, Saroj, Peter Rosenbaum, Barbara Stoskopf, Lorraine Hoult, William Furlong, David Feeny, Elizabeth Burrows, and George Torrance, "Comprehensive Assessment of the Health Status of Extremely Low Birthweight Children at Eight Years of Age: Comparison with a Reference Group." Journal of Pediatrics, Vol. 125, No. 3, September, 1994, pp 411-417. [Clinical; Construct Validity][Canada, Neo-natal Intensive Care]

Saigal, Saroj, David Feeny, William Furlong, Peter Rosenbaum, Elizabeth Burrows, and George Torrance, "Comparison of the Health-Related Quality of Life of Extremely Low Birthweight Children and a Reference Group of Children at Age Eight Years." Journal of Pediatrics, Vol. 125, No. 3, September, 1994, pp 418-425. [Clinical; Construct Validity][Canada, Neo-natal Intensive Care]

Sawka, A. M., L. Thabane, A. Papionannou, A. Gafni, G. Ioannidis, E. A. Papadimitropoulos, W. M. Hopman, A. Crannery, D. A. Hanley, L. Pickard, and J. D. Adachi, "Health-Related Quality of Life Measurements in Elderly Canadians with Osteoporosis Compared to Other Chronic Medical Conditions: A Population-Based Study from the Canadian Multicentre Osteoporosis Study (CaMOS)." Osteoporosis International, Vol. 116, NO. 12, December 2005, pp 1836-1840. Published online August 18, 2005. [HUI3; Construct Validity][Canada, osteoporosis]

Schunemann, Holger J., Roger Goldstein, M. Jeffrey Mador, Dougls McKim, Elisabeth Stahl, M.

Puhan, Laurent E. Griffith, B. Grant, P Austin, R. Collins, and Gordon H. Guyatt, "A

Randomised Trial to Evaluate the Self-Administered Standardised Chronic Respiratory

Questionnaire." European Respiratory Journal, Vol. 25, No. 1, January, 2005, pp 31-40. [HUI3;

Construct Validity; Responsiveness][Canada, CORD]

Schunemann, Holger J., Roger Goldstein, M. Jeffrey Mador, Douglas McKim, Elisabeth Stahl, Lauren E. Griffith, Ahmed M. Bayoumi, Peggy Austin, and Gordon H. Guyatt, "Do Clinical Marker States Improve Responsiveness and Construct Validity of the Standard Gamble and Feeling Thermometer: A Randomized Multi-center Trial in Patients with Chronic Respiratory Disease." Quality of Life Research, Vol. 15, No. 1, February, 2006, pp 1-14. [HUI3; Construct Validity][Canada, respiratory disease]

Schunemann, Holger J., Gordon H. Guyatt, Lauren Griffith, David Stubbing, and Roger Goldstein, "A Randomized Controlled Trial to Evaluate the Effect of Informing Patients about their Pretreatment Responses to Two Questionnaires." Chest, Vol. 122, No. 5, November, 2002, pp 1701-1708. [HUI3; Construct Validity; Responsiveness][respiratory disease, Canada]

Schunemann, Holger J., Lauren Griffith, David Stubbing, Roger Goldstein, and Gordon H. Guyatt, "A Clinical Trial to Evaluate the Measurement Properties of 2 Direct Preference Instruments Administered with and without Hypothetical Marker States." Medical Decision Making, Vol. 23, No. 2, March-April, 2003, pp 140-149. [HUI3, Clinical, Construct Validity, Responsiveness]

Schunemann, Holger J., David Armstrong, Alessio Degl'innocenti, Ingela Wiklund, Carlo A. Fallone, Lisa Tanser, Sander Veldhuyzen Van Zanten, Diane Heels-Ansdell, Samer El-Dika, Naoki Chiba, Alan N. Barkun, Peggy Austin, and Gordon H. Guyatt, "A Randomized Multicenter Trial to Evaluate Simple Utility Elicitation Techniques in Patients with Gastroesophageal Reflux Disease." Medical Care, Vol. 42, No.11, November, 2004, pp 1132-1142. [HUI3; Construct Validity]

Shaw, Amanda K., Howard I. Morrison, Kathy N. Speechley, Elizabeth Maunsell, Maru Barrera, Dena Schanzer, Lisa Pogany, Marie Desmeules, "The Late Effects Study: Design and Subject Representativeness of a Canadian Multi-centre Study of Late Effects of Childhood Cancer." Chronic Disease in Canada, Vol.25,3,Summer 2004, pp 1-8. [HUI3][Canada, pediatric oncology]

Shimoda, Sandra, Beatriz de Camargo, John Horsman, William Furlong, Luiz Fernando Lopes, Adrianna Seber, and Ronald D. Barr, "Translation and Cultural Adaptation of Health Utilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with Application to Survivors of Childhood Cancer in Brazil." Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1407-1412. [HUI2; HUI3; Inter-rater Agreement; Reliability; Construct Validity][Brazil, childhood cancer]

Siderowf, Andrew, Bernard Ravina, and Henry A. Glick, "Preference-Based Quality-of-Life in Patients with Parkinson's Disease." Neurology, Vol. 59, No. 1, July, 2002, pp 103-108. [HUI2; Construct Validity][USA, Parkinson Disease]

Speechley, Kathy Nixon, Elizabeth Maunsell, Marie Desmeules, Dena Schanzer, Jeanne Landgraf, David H. Feeny, and Maru E. Barrera, "Mutual Concurrent Validity of the Child Health Questionnaire and the Health Utilities Index: An Exploratory Analysis Using Survivors of Childhood Cancer." International Journal of Cancer, Supplement 12, December, 1999, pp 95-105. [Clinical; Construct Validity][Canada, Pediatric, Cancer]

Stiell, Ian, Graham Nichol, George Wells, Valerie De Maio, Lisa Nesbitt, Jos‚e Blackburn, and Daniel Spaite, "Health-Related Quality of Life Is Better for Cardiac Arrest Survivors Who Received Citizen Cardiopulmonary Resuscitation." Circulation, Vol. 108, No. 16, October 21, 2003, pp 1939-1944. [HUI3; Construct Validity][USA and Canada, cardiac care]

Stiell, Ian G., George A. Wells, Brian Field, Daniel W. Spaite, Lisa P. Nesbitt, Valerie J. De Maio, Graham Nichol, Donna Cousineau, Jos‚e Blackburn, Doug Munkley, Lorraine Luinstra- Toohey, Tony Campeau, Eugene Dagnone, and Marion Lyver, "Advanced Cardiac Life Support in Out-of-Hospital Cardiac Arrest." New England Journal of Medicine, Vol. 351, No. 7, August 12, 2004, pp 647-656. [HUI3; Clinical][Canada, cardiac care]

Stolk, E. A., and J. J. V. Busschbach, "A Comparison of the EuroQol and the Health Utilities Index in Patients Treated for Congenital Anomalies." European Journal of Health Economics: Health Economics in Prevention and Care, Vol. 2, No. 2, 2001, pp 54-59. [HUI3; Clinical; Construct Validity][Netherlands]

Suarez-Almazor, Maria E., Chris Kendall, Jeffrey A. Johnson, K. Skeith, and D. Vincent, "Use of Health Status Measures in Patients with Low Back Pain in Clinical Settings. Comparison of Specific, Generic, and Preference-Based Instruments. Rheumatology, Vol. 39, No. 7, July, 2000, pp 783-790. [HUI2; Clinical; Construct Validity; Reliability; Responsiveness][Canada; Low Back Pain]

Sullivan, Sean D., Antonio Craxi, Alfredo Alberti, Giovanni Giuliani, Claudio De Carli, Neil Wintfeld, Kavita K. Patel, and Jesse Green, "Cost Effectiveness of Peginterferon ?-2a Plus Ribavirin versus Interferon ?-2a Plus Ribavirin as Initial Therapy for Treatment-Naive Chronic Hepatitis C." Pharmacoeconomics, Vol. 22, No. 4, 2004, pp 257-265. [HUI2; Construct Validity]

Summerfield, A. Quentin, David H. Marshall, Garry R. Barton, and Karen E. Bloor, "A Cost-Utility Scenario Analysis of Bilateral Cochlear Implantation." Archives of Otolaryngology - Head and Neck Surgery, Vol. 128, No. 11, November, 2002, pp 1255-1262. [HUI2; Clinical; Construct Validity][United Kingdom, hearing, cochlear implants]

Sung, Lillian, Mark L. Greenberg, J. J. Doyle, Nancy L. Young, S. Ingber, J. Rubenstein, J. Wong, T. Samanta, M. McLimont, and B. M. Feldman, "Construct Validation of the Health Utilities Index and the Child Health Questionnaire in Children Undergoing Cancer Chemotherapy." British Journal of Cancer, Vol. 88, No. 8, April, 2003, pp 1185-1190. [HUI2; HUI3; Construct Validity][Canada, childhood cancer]

Supina, Alison L., David H. Feeny, Linda J. Carroll, and Jeffrey A. Johnson, "Misinterpretation with Norm-Based Scoring of Health Status in Adults with Type-1 Diabetes." Health and Quality of Life Outcomes (electronic journal) (Vol 4:15, March 16, 2006) http://www.hqlo.com/content/4/1/15 [HUI3; Construct Validity][Diabetes, Canada]

Szecket, Nicolas, Gabriela Medin, William J. Furlong, David H. Feeny, and Ronald D. Barr, "Preliminary Translation and Cultural Adaptation of Health Utilities Index Questionnaires for Application in Argentina." International Journal of Cancer, Supplement 12, December, 1999, pp 119-124. [Clinical; Construct Validity; Cultural Adaptation][Argentina, Pediatric, Cancer]

Taylor, Anna, Warwick Butt, Jeffrey Rosenfeld, Frank Shann, Michael Ditchfield, Elizabeth Lewis, Geoffrey Klug, David Wallace, Robert Henning, and James Tibballs, "A Randomized Trial of Very Early Decompressive Craniectomy in Children with Traumatic Brain Injury and Sustained Intracranial Hypertension." Child's Nervous System, Vol. 17, No. 3, February, 2001, pp 154-162. [HUI1; Construct Validity][Australia, pediataric neurology]

Thoma, Achilleas, Sheila Sprague, Karen Veltri, Eric Duku, and William Furlong, "Methodology and Measurement Properties of Health-Related Quality of Life Instruments: A Prospective Study of Patients Undergoing Breast Reduction Surgery." Health and Quality of Life Outcomes (electronic journal), Vol. 3, 44, July 22, 2005. http://www.hqlo.com/content/3/1/44. [HUI2; HUI3; Test-retest Reliability; Construct Validity; Responsiveness][Canada, breast reduction surgery]

Thumboo, J., H-L. Wee, Y-B. Cheung, D. Machin, N. Luo, D. Feeny, and K-Y Fong, "Computerized versus Interviewer Administration of Health-related Quality of Life Instruments Compared to Interviewer Administered May Reduce Sample Size Requirements in Clinical Research: A Pilot Randomized Controlled Trial among Rheumatology Patients." Clinical and Experimental Rheumatology, Vol. 25, No. 4, July-August, 2007, pp 577-583. [HUI2; HUI3; Mode of Administration][Singapore]

Tilford, John M., Scott D. Grosse, James. M. Robbins, Jeffrey M. Pyne, Mario A. Cleves, and Charlotte A. Hobbs, "Health State Preference Scores for Children with Spina Bifida and Their Caregivers." Quality of Life Research, Vol. 14, No. 4, May, 2005, pp 1087-1098. [HUI2; Construct Validity][USA, neural tube defects]

Torrance GW, Tugwell P, Amorosi S, Chartash E, Sengupta N. "Improvement in health utility among patients with rheumatoid arthritis treated with adalimumab (a human anti-TNF monoclonal antibody) plus methotrexate." Rheumatology Advance Access published March 23, 2004, DOI 10.1093/rheumatology/keh153.
On-line access here... http://rheumatology.oupjournals.org/cgi/content/abstract/keh153?ijkey=05yC79TX45kYA&keytype=ref [HUI3, construct validity, responsiveness][Canada, USA, rheumatoid arthritis]. See also ... Torrance et al, Rheumatology 2004.

Torrance GW, Tugwell P, Amorosi S, Chartash E, Sengupta N. "Improvement in health utility among patients with rheumatoid arthritis treated with adalimumab (a human anti-TNF monoclonal antibody) plus methotrexate." Rheumatology, Vol.43,6,June 2004, pp 712-718 [HUI3, construct validity, responsiveness][Canada, USA, rheumatoid arthritis].

Torrance GW, Raynauld JP, Walker V, Goldsmith CH, Bellamy N, Band PA, Schultz M, Tugwell P. "A Prospective, Randomized, Pragmatic Health Outcomes Trial Evaluating the Incorporation of Hylan G-F 20 into the Treatment Paradigm for Patients with Knee Osteoarthritis (Part 2 of 2): Economic Results." Osteoarthritis and Cartilage, Vol. 10, No. 7, 2002, pp 518-527. [HUI3, Construct Validity, Responsiveness][Canada, Knee Osteoarthritis][see Raynauld et al above for Part 1 of 2: Clinical Results]

Torrance, George W., Valery Walker, Ronald Grossman, Jayanit Mukherjee, David Vaughan, Jacque LaForge, and Noel Lampron, "Economic Evaluation of Ciprofloxacin Compared with Usual Antibacterial Care for the Treatment of Acute Exacerbations of Chronic Bronchitis in Patients Followed for 1 Year." PharmacoEconomics, Vol. 16, No. 5, Part 1, November, 1999, pp 499-520. [Clinical; Construct Validity][Canada, Bronchitis]

Trudel, J. G., M. Rivard, P.L. Dobkin, J.-M. Leclerc and P. Robaey, "Psychometric Properties of the Health Utilities Index Mark 2 System in Paediatric Oncology Patients." Quality of Life Research, Vol. 7, No. 5, July, 1998, pp 421-432. [Clinical][Canada, Pediatric, Cancer]

van Schaik, Charmaine S., Ronald D. Barr, Sonja De Pauw, William Furlong, and David Feeny, "Assessment of Health Status and Health-Related Quality of Life in Survivors of Hodgkin Disease in Childhood." International Journal of Cancer, Supplement 12, December, 1999, pp 32-38. [Clinical; Construct Validity][Canada, Pediatric, Hodgkins Disease]

Wee, Hwee-Lin, Yin-Bun Cheung, Wai-Chong Loke, Chee-Bank Tan, Mun-Hong Chow, Shu-Chuen Li, Kok-Yong Fong, David Feeny, David Machin, Nan Luo, and Julian Thumboo, "The Association of Body Mass Index with Health-Related Quality of Life: An Exploratory Study in a Multi-Ethnic Asian Population," Value in Health, forthcoming. [HUI3; Construct Validity][Singapore, Clinical and Population Health, obesity]

Wiebe, Samuel, Suzan Matijevic, Michael Eliasziw, and P. A. Derry, "Clinically Important Change in Quality of Life in Epilepsy." Journal of Neurology, Neurosurgery, and Psychiatry, Vol. 73, No. 2, August, 2002, pp 116-120. [HUI3; Interpretation; Responsiveness][Canada, epilepsy]

Wiebe, Samuel, Michael Eliasziw, and Suzan Matijevic, "Changes in Quality of Life in Epilepsy: How Large Must They Be to be Real?" Epilepsia, Vol. 42, No. 1, January, 2001, pp 113-118. [HUI3; Interpretation; Reliability; Responsiveness][Canada, epilepsy]

Whitton, Anthony C., Helen Rhydderch, William Furlong, David Feeny, and Ronald D. Barr, "Self-Reported Comprehensive Health Status of Adult Brain Tumor Patients Using the Health Utilities Index." Cancer, Vol. 80, No. 2, July 15, 1997, pp 258-265. [Clinical; Construct Validity][Canada, Adult, Brain Tumour]

Wodchis, Walter P., Colleen J. Maxwell, Adriana Venturini, Jennifer D. Walker, Jenny Zhang, David B. Hogan, and David H. Feeny, "Study of Observed and Self-Reported HRQL in Older Frail Adults Found Group-Level Congruence and Individual-Level Differences." Journal of Clinical Epidemiology, Vol. 60, No. 5, May, 2007, pp 502-511. [HUI2; Construct Validity; Inter-rater Reliability]

Wodchis, Walter P., John P. Hirdes, and David H. Feeny, "A Health-Related Quality of Life Measure Based on the Minimum Data Set." International Journal of Technology Assessment in Health Care, forthcoming. [HUI2, Construct Validity] [Canada, Long-term Care]

Wright, Marilyn J., Victoria Galea, and Ronald D. Barr, "Self-Perceptions of Physical Activity in Survivors of Acute Lymphoblastic Leukemia in Childhood." Pediatric Exercise Science, Vol. 15, No. 2, May, 2003, pp 191-201. [HUI2; HUI3; Construct Validity][Canada, childhood acute lympoblastic leukemia]

Wright, Marilyn J., Vicky Galea, and Ronald D. Barr, "Proficiency of Balance in Children and Youth Who Have Had Acute Lymphoblastic Leukemia." Physical Therapy, Vol. 85, No. 8, August, 2005, pp 782-790. [HUI3; Construct Validity][Canada, Childhood Cancer]

Wyatt, JR, J. K. Niparko, M. Rothman, and G. de Lissovoy, "Cost Utility of the Multichannel Cochlear Implant in 258 Profoundly Deaf Individuals." Laryngoscope, Vol. 106, July, 1996, pp 816-821. [Clinical; Evaluative][USA, Cochlear Implant]

Yaris, Nilgun, Melek Nur Yavuz, A. Aydin Yavuz, and Aysenur Okten, "Assessment of Quality of Life in Pediatric Cancer Patients at Diagnosis and During Therapy." Turkish Journal of Cancer, Vol. 31, No. 4, 2001, pp 139-149.[HUI2; Clinical; Construct Validity; Responsiveness][Turkey]

Yi, Michael S., Maria T. Britto, Robert W. Wilmott, Uma R. Kotagal, Mark H. Eckman, Dennis W. Nielson, Vikki L. Kociela, and Joel Tsevat, "Health Values of Adolescents with Cystic Fibrosis." Journal of Pediatrics, Vol. 142, No. 2, February, 2003, pp 133-140. [HUI2; Construct Validity][USA cystic fibrosis]

Young, Nancy L., J. Ivan Williams, Karen K. Yoshida, and James G. Wright, "Measurement Properties of the Activities Scale for Kids." Journal of Clinical Epidemiology, Vol. 53, No. 2, February, 2000, pp 125-137. [HUI3; Construct Validity]

Younossi, Zobair, Navdeep Boparai, Marilyn McCormick, Lori Lynn Price, and Gordon Guyatt, "Assessment of Utilities and Health-related Quality of Life in Patients with Chronic Liver Disease." American Journal of Gastroenterology, Vol. 96, No. 2, February, 2001, pp 579-583. [HUI2; Clinical; Construct Validity][United States, Liver Disease]

Zhang, Jenny X., Jennifer D. Walker, Walter P. Wodchis, David B. Hogan, David H. Feeny, and Colleen J. Maxwell, "Measuring Health Status and Decline in At Risk Seniors Residing in the Community Using the Health Utilities Index Mark 2." Quality of Life Research, Vol. 15, No. 8, October, 2006, pp 1415-1426 (June 22, 2006, E-Publication). [HUI2; Construct Validity; Responsiveness]

Return to top of page.

Population Health Applications of HUI [Cross-Cultural Validation; Description; Reliability; Scoring; Theory; Validity] (Listed alphabetically by 1st author)

Adachi, J. D., G. Ioannidis, L. Pickard, C. Berger, J. C. Prior, L. Joseph, D. A. Hanley, W. P. Olszynski, T. M. Murray, T. Anastassiades, W. Hopman, J. P. Brown, S. Kirland, C. Joyce, A. Papioannou, S. Poliquin, A. Tennenhouse, and E. A. Papadimitropoulos, "The Association Between Osteoporotic Fractures and Health-Related Quality of Life as Measured by the Health Utilities Index in the Canadian Multicentre Osteoporosis Study (CaMos)." Osteoporosis International, Vol. 14, No. 11, November, 2003, pp 895-904. [HUI2; HUI3; Construct Validity][Canada, osteoporosis]

Alberta Health and Wellness, Chronic Pain in Alberta: A Portrait from the 1996 National Population Health Survey and the 2001 Canadian Community Health Survey. Edmonton, Alberta Health and Wellness, Health Surveillance, May, 2003. [HUI3 pain; Construct Validity][Canada]

Au, Doreen Wing Han, Thomas F. Crossley, and Martin Schellhorn, "The Effect of Health Changes and Long-Term Health on the Work Activity of Older Canadians." Health Economics, Vol. 14, No. 10, October, 2005, pp 999-1018. [HUI3; Cross-sectional and Longitudinal Construct Validity]

Austin, Peter C., "A Comparison of Methods for Analyzing Health-Related Quality-of-Life Measures." Value in Health, Vol. 5, No. 4, July-August, 2002, pp 329-337. [HUI3][Canada]

Austin, Peter C., "Bayesian Extensions for the Tobit Model for Analyzing Measures of Health Status." Medical Decision Making, Vol. 22, No. 2, March-April, 2002, pp 152-162. [HUI3; Construct Validity][Canada]

Beland, Yves, "Canadian Community Health Survey - Methodological Overview." Health Reports, Vol, 13, No. 3, March, 2002, pp 9-14. [HUI3][Canada]

Berthelot, Jean-Marie, Roger Roberge, and Michael Wolfson, "The Calculation of Health-Adjusted Life Expectancy for a Canadian province using a Multi-Attribute Utility Function: A First Attempt." in J. M. Robine, C. D. Mathers, M. R. Bone, and I. Romieu, Calculation of Health Expectancies: Harmonization, Consensus Achieved and Future Perspectives. Montrouge, France: Colloque INSERM/John Libbey Eurotext Ltd., Vol. 226, 1993, pp 161-172. [Construct Validity][Canada, Population Health]

Boyle, Michael H., William Furlong, David Feeny, George Torrance, and Jeff Hatcher, "Reliability of the Health Utilities Index - Mark III Used in the 1991 Cycle 6 General Social Survey Health Questionnaire." Quality of Life Research, Vol. 4, No 3, June, 1995, pp 249-257. [Reliability][Canada, Population Health]

Brehaut, Jamie C., Dafna E. Kohen, Parminder Raina, Stephen D. Walter, Dianne J. Russell, Marilyn Swinton, Maureen O'Donnell, and Peter Rosenbaum, "The Health of Primary Caregivers of Children with Cerebral Palsy: How Does It Compare with that of Other Canadian Caregivers?" Pediatrics, Vol. 114, No. 2, August, 2004, pp 182-191. [HUI3; Construct Validity]

Curtis, Lori J., Martin D. Dooley, Ellen L. Lipman, and David H. Feeny, "The Role of Permanent Income and Family Structure in the Determination of Child Health in Canada". Health Economics, Vol. 10, No. 4, June, 2001, pp 287-302. [HUI3; Construct Validity]

Denton, Margaret, and Vivienne Walters, "Gender Differences in Structural and Behavioral Determinants of Health: An Analysis of the Social Production of Health." Social Science & Medicine, Vol. 48, No. 9, May, 1999, pp 1221-1235. [HUI3; Construct Validity][Canada]

Denton, Margaret, Steven Prus, and Vivienne Walters, "Gender Differences in Health: A Canadian Study of the Psychosocial, Structural, and Behavioural Determinants of Health." Social Science and Medicine, Vol. 58, No. 12, June, 2004, pp 2585-2600. [HUI3; Construct Validity]

DesMeules, Marie, Douglas Manuel, and Robert Cho, "Mortality: Life and Health Expectancy of Canadian Women." BMC Women's Health, Vol. 4, Supplement 1, S9 (http://www.biomedcentral.com/1472-6874/S1/S9 [HUI3][Canada, Population health]

Erickson, Pennifer, "Modeling Health-Related Quality of Life: The Bridge Between Psychometrics and Utility-Based Measures." Journal of the National Cancer Institute Monographs, No. 20, 1966, pp 17-22. [HUI1; Construct Validity][Pop'ln Health, USA]

Feeny, David, "The Health Utilities Index: A Tool for Assessing Health Benefits." PRO Newsletter, No. 34, Spring, 2005, pp 2-6. [HUI2; HUI3; Review Article]

Feeny, David, "Health-Status Classification Systems for Summary Measures of Population Health." Chapter 7.2 in Christopher J.L.Murray, Joshua A. Salomon, Colin D. Mathers, and Alan D. Lopez, eds., Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications. Geneva, World Health Organization, 2002, pp 329-341. [HUI2, HUI3, Review]

Feeny, David, "The Utility Approach to Assessing Population Health," Chapter 10.2 in Christopher J.L.Murray, Joshua A. Salomon, Colin D. Mathers, and Alan D. Lopez, eds., Summary Measures of Population Health: Concepts, Ethics, Measurement and Applications. Geneva, World Health Organization, 2002, pp 329-341. [HUI2, HUI3, Review]

Feeny, David H., George W. Torrance, Charles H. Goldsmith, William Furlong, and Michael Boyle. 1993. "A Multi-attribute Approach to Population Health Status." Proceedings of the 153rd Annual Meeting of the American Statistical Association (Alexandria, VA: American Statistical Association, 1994), pp 161-166; modestly revised version available as McMaster University Centre for Health Economics and Policy Analysis Working Paper 94-05, February, 1994. [Scoring; Theory]

Fryback, Dennis G., Nancy Cross Dunham, Mari Palta, Janel Hanmer, Jennifer Buechner, Dasha

Cherepanov, Shani Herrington, Ron D. Hays, Robert M. Kaplan, Ted Ganiats, David Feeny, and

Paul Kind, "U.S. Norms for Six Generic Health-Related Quality of Life Indexes from the

National Health Measurement Study." Medical Care, forthcoming. [HUI2; HUI3; Construct

Validity][USA Population Health]

Goel, Vivek, Karey Iron, and J. Ivan Williams, "Indicators of Health Determinants and Health Status." Chapter 2 in Vivek Goel, J. Ivan Williams, Geoffrey M. Anderson, Paula Blackstien-Hirsch, Cathy Fooks, and C. David Naylor, eds., Patterns of Health Care in Ontario. The ICES Practice Atlas, 2nd Edition. Toronto, Institute for Clinical Evaluative Sciences, 1996, pp 5-26. (This report is available at: http://www.ices.on.ca/index.asp) [HUI3; Description]

Gold, Marthe R, David Stevenson, and Dennis G. Fryback, "HALYs and QALYs and DALYs, Oh My: Similarities and Differences in Summary Measures of Population Health." Annual Review of Public Health, Vol. 23, 2002, pp 115-134. [HUI1; HUI2; HUI3; Summary Measures]

Gold, Marthe, Peter Franks, and Pennifer Erickson. "Assessing the Health of the Nation: The Predictive Validity of a Preference-Based Measure and Self-Rated Health." Medical Care, Vol. 34, No. 2, February, 1996, pp 163-177. [Predictive Validity][USA, Population Health]

Grootendorst, Paul, "Results on an Investigation into the Integrity of the Ontario Health Survey." McMaster University, Centre for Health Economics and Policy Analysis Working Paper No 93-11, December, 1993. [Reliability][Canada, Population Health]

Grootendorst, Paul, David Feeny, and William Furlong, "Does It Matter Whom and How You Ask? An Investigation into Inter- and Intra-rater Agreement in the 1990 Ontario Health Survey." Journal of Clinical Epidemiology, Vol. 50, No 2, February, 1997, pp 127-135. [Reliability][Canada, Population Health]

Grootendorst, Paul, David Feeny, and William Furlong, "Health Utilities Index Mark 3: Evidence of Construct Validity for Stroke and Arthritis in a Population Health Survey." McMaster University, Centre for Health Economics and Policy Analysis Working Paper No. 99-06, June, 1999. [Construct Validity][Canada, Population Health]

Grootendorst, Paul, David Feeny, and William Furlong, "Health Utilities Index Mark 3: Evidence of Construct Validity for Stroke and Arthritis in a Population Health Survey." Medical Care, Vol. 38(3), March, 2000, pp 290-299. [Construct Validity][Canada, Population Health]

Holmes, Ann M., "A QALY-Based Societal Health Statistic for Canada, 1985." Social Science Medicine, Vol. 41, No. 10, 1995, pp 1417-1427. [Scoring][Canada, Population Health]

Hood, Sheila C., Marie P. Beaudet, and Gary Catlin, "A Healthy Outlook." Health Reports, Vol. 7, No 4, Spring, 1996, pp 25-32. [Construct Validity][Canada, Population Health]

Houle, Christian, and Jean-Marie Berthelot, "A Head-to-Head Comparison of the Health Utilities Mark 3 and the EQ-5D for the Population Living in Private Households in Canada." Quality of Life Newsletter, No. 24, January - June, 2000, pp 5-6. [HUI3; Construct Validity]

Huguet, Nathalie, Mark S. Kaplan, and David Feeny, "Socioeconomic Status and Health-Related Quality of Life Among Elderly People in Canada and the United States." Social Science & Medicine, forthcoming. [HUI3; Construct Validity][USA and Canada, Population Health]

Humphries, Karin H., and Eddy van Doorslaer, "Income-Related Inequality in Canada." Social Science & Medicine, Vol. 50, No. 5, March, 2000, pp 663-671. [HUI3; Construct Validity]

Kaplan, Robert M., and Pennifer Erickson, "Gender Differences in Quality-Adjusted Survival Using a Health Utilities Index." American Journal of Preventive Medicine, Vol. 18, No. 1, January, 2000, pp 77-82. [Construct Validity]

Kopec, Jacek A., J. Ivan Williams, Teresa To, and Peter C. Austin, "Measuring Population Health: Correlates of the Health Utilities Index among English and French Canadians." Canadian Journal of Public Health, Vol. 91, No. 6, November-December, 2000, pp 465-470. [HUI3; Construct Validity][Canada]

Kopec J., Schultz S., Goel V., Williams J. "Can the Health Utilities Index measure change?" Med Care, Vol. 39 (6), 2001, pp 562-574. [HUI3, Validity][Canada, NPHS]

Lasser, Karen E., David U. Himmelstein, and Steffie Woolhandler, "Access to Care, Health Status, and Health Disparities in the United States and Canada: Results of a Cross-National Population-Based Survey." American Journal of Public Health, Vol. 96, No. 7, July, 2006. [HUI3; Construct Validity][Canada, USA, population health]

Lauridsen, Jorgen, Terkel Christiansen, and Unto Hakkinen, "Measuring Inequality in Self-Reported Health - Discussion of a Recently Suggested Approach using Finnish Data." Health Economics, Vol. 13, No. 7, July, 2004, pp 725-732. [HUI3; Methods]

Lecluyse, Ann and Irina Cleemput, "Making Health Continuous: Implications of Difference Methods on the Measurement of Inequality." Health Economics, Vol. 15, No. 1, January, 2006. pp 99-104. [HUI3, Construct Validity][Belguim]

Lindeboom, Maarten, and Eddy van Doorslaer, "Cut-point Shift and Index Shift in Self-Reported Health." Journal of Health Economics, Vol. 23, No. 6, November, 2004, pp 1083-1099. [HUI3; Construct Validity]

Luo, Nan, Jeffrey A. Johnson, James W. Shaw, David Feeny, and Stephen Joel Coons, "Self- reported Health Status of the General Adult US Population as Assessed by the EQ-5D and Health Utilities Index." Medical Care, 2005, forthcoming. [HUI2; HUI3; Construct Validity]

Macran, Susan, Helen Weatherly, and Paul Kind, "Measuring Population Health: A Comparison of Three Generic Health Status Measures." Medical Care, Vol. 41, No. 2, February, 2003, pp 218-231. [modified non-standard version of HUI3; Construct Validity; Primary Care; Routine Use][UK]

Maddigan, Sheri L., David H. Feeny, and Jeffrey A. Johnson, "Health Related Quality of Life Deficits Associated with Diabetes and Comorbidities in a Canadian National Population Health Survey." Quality of Life Research, Vol. 14, No. 5, June, 2005, pp 1311-1320. [HUI3; Construct Validity][Canada, diabetes]

Maddigan, Sheri L., David H. Feeny, Sumit R. Majumdar, Karen B. Farris, and Jeffrey A. Johnson, "Understanding the Determinants of Health in Type-2 Diabetes." American Journal of Public Health, forthcoming. [HUI3; Construct Validity]

Maddigan, Sheri L., David H. Feeny, Sumit R. Majumdar, Karen B. Farris, and Jeffrey A. Johnson, "Health Utilities Index Mark 3 Demonstrated Construct Validity in a Population-Based Sample with Type 2 Diabetes." Journal of Clinical Epidemiology, 2005, forthcoming. [HUI3; Construct Validity]

Manuel, Douglas G., Vivek Goel, J. Ivan Williams, and Paul Corey, "Health-Adjusted Life Expectancy at the Local Level in Ontario." Chronic Diseases in Canada, Vol. 21, No. 2, 2000, pp 73-80. [HUI3; Construct Validity][Canada, population health]

Manuel, Douglas G., Susan E. Schultz, and Jacek A. Kopec, "Measuring the Health Burden of Chronic Disease and Injury using Health-Adjusted Life Expectancy and the Health Utilities Index." Journal of Epidemiology and Community Health, Vol 56, No. 11, November 2002, pp 843-850. [HUI3; Construct Validity][Canada, population health]

Manuel, Douglas G., and Susan E. Schultz, "Adding Years to Life and Life to Years: Life and Health Expectancy in Ontario," Report 1, Institute for Clinical Evaluative Sciences Atlas Report: The Health of Ontarians. Toronto, Institute for Clinical Evaluative Sciences, 2001. (This report is available at: http://www.ices.on.ca/index.asp) [HUI3; Description]

Manuel, Douglas G., and Susan E. Schultz, "Adding Years to Life and Life to Years: Life and Health Expectancy in Ontario - Technical Supplement," Report TS-1, Institute for Clinical Evaluative Sciences Atlas Report: The Health of Ontarians. Toronto, Institute for Clinical Evaluative Sciences, 2001. (This report is available at: http://www.ices.on.ca/index.asp) [HUI3; Description]

Manuel, Douglas G., Wei Luo, Anne-Marie Ugnat, Yang Mao, "Cause-deleted health-adjusted life expectancy of Canadians with selected chronic conditions." Chronic Diseases in Canada, Vol. 24, No. 4, 2003, pp 108-115.[HUI3][Canada, Population Health]

Manuel, Douglas G., Susan E. Schultz, "Diabetes - Health Status and Risk Factors." Diabetes in Ontario-Practice Atlas, Chapt. 4, 2002, pp 77-94.

Manuel, Douglas G., Susan E. Schultz, "Using Linked Data to Calculate Summary Measures of Population Health: Health-adjusted Life Expectancy of People with Diabetes Mellitus." Population Health Metrics, Vol. 2, No. 1, 2004, 4; http://www.pophealthmetrics.com/content/2/1/4 [HUI3][Canada, Population Health]

Manuel, Douglas C., Mark Leung, Kathy Nguyen, Peter Tanuseputro, and Helen Johansen, "Burden of Cardiovascular Disease in Canada." Canadian Journal of Cardiology, Vol. 19, No. 9, August, 2003, pp 997-1004. [HUI3][Canada, Population Health]

Manuel, Douglas G., and Susan E. Schultz, "Health-Related Quality of Life and Health-Adjusted Life Expectancy of People with Diabetes in Ontario, Canada, 1996-1997." Diabetes Care, Vol. 27, No. 2, February, 2004, pp 407-414. [HUI3][Canada, Population Health]

Millar, Wayne J., "Chronic Pain." Health Reports, Vol. 7, No. 4, Spring, 1996, pp 47-53. [HUI3;Construct Validity of HUI3 pain scale][Canada]

Mittmann, Nicole, Kostas Trakas, Nancy Risebrough, and Barbara A. Liu, "Utility Scores for Chronic Conditions in a Community-Dwelling Population." Pharmacoeconomics, Vol. 15, No. 4, April, 1999, pp 369-376. [Scoring][Canada, Population Health]

Mo, Frank, Bernard C. K. Choi, Felix C. K. Li, and Joav Merrick, "Using Health Utility Index (HUI) for Measuring the Impact on Health-Related Quality of Life (HRQL) Among Individuals with Chronic Diseases." Scientific World Journal, Vol. 4, August, 27, 2004, pp 746-757. [HUI3; Construct Validity][Canada]

Nault, F., Roger Roberge, and Jean-Marie Berthelot, "Espérance de vie et espérance de vie en santé selon le sexe, l'état matrimonial et le statut socio-économique au Canada." Cahiers québécois de démographie, Vol. 25, No. 2, 1996, 241-259 (In French). [HUI3; Construct Validity]

Newbold, K. Bruce, and Jeff Danforth, "Health Status and Canada's Immigrant Population." Social Science and Medicine, Vol. 57, No. 10, November, 2003, pp 1981-1995. [HUI3; Construct Validity]

Pogany, Lisa, Ronald D. Barr, Amanda Shaw, Kathy N. Speechley, Maru Barrera, and Elizabeth Maunsell, "Health Status in Survivors of Cancer in Childhood and Adolescence." Quality of Life Research, Vol. 15, No. 1, February, 2006, pp 143-157. [HUI3; Construct Validity]

Raina, Parminder, Brenda Bonnett, David Waltner-Toews, Christel Woodward, and Tom Abernathy, "How Reliable are Selected Scales from Population-based Health Surveys? An Analysis Among Seniors." Canadian Journal of Public Health, Vol. 90, No. 1, January-February, 1999, pp 60-64. [Reliability of selected HUI3 items]

Richardson, Chris G., and Bruno D. Zumbo, "A Statistical Examination of the Health Utilities Index - Mark III As a Summary Measure of Health Status for a General Population Health Survey." Social Indicators Research, Vol. 51, No. 2, 2000, pp 171-191. [HUI3; Construct Validity]

Rizzo, John A., Steven Pahko, Rebecca Friedkin, John Mullahy, and Jody L. Sindelar, "Linking the Health Utilities Index to National Medical Expenditure Survey Data.", PharmacoEconomics, Vol. 13, No.5, Part 1, May, 1998, pp 531-541.[Construct Validity] [USA, Population Health]

Rizzo, John A. and Jody L. Sindelar, "Linking Health-Related Quality-of-Life Indicators to Large National Data Sets." PharmacoEconomics, Vol. 16, No. 5, Part 1, November, 1999, pp 473-482. [Construct Validity][USA, Population Health]

Roberge, Roger, Jean-Marie Berthelot, and K. Cranswick, "Adjusting Life Expectancy to Account for Disability in a Population: A Comparison of Three Techniques." Social Indicators Research, Vol. 48, 1999, pp 217-243. [HUI3; Scoring][Canada, Population Health]

Roberge, Roger, Jean-Marie Berthelot, and Michael Wolfson, "Health and Socio-economic Inequalities." Canadian Social Trends, No. 37, Summer, 1995, pp 15-19 (also available in French). [Construct Validity][Canada, Population Health]

Roberge, Roger, Jean-Marie Berthelot, and Michael Wolfson, "The Health Utility Index: Measuring Health Differences in Ontario by Socioeconomic Status." Health Reports, Vol. 7, No. 2, November, 1995, pp 25-32 (also available in French). [Construct Validity][Canada, Population Health]

Roberge, Roger, Jean-Marie Berthelot, and K. Cranswick, "Linking Disability-Adjusted Life Expectancy with Health Adjusted Life Expectancy: Calculations for Canada," Presented at the 9th meeting of the Health Expectancy Network (REVES 9), Rome, Italy, December 1996. [Construct Validity][Canada, Population Health]

Roberge, Roger, Jean-Marie Berthelot, and Michael C. Wolfson, "Adjusting Life Expectancy to Account for Morbidity in a National Population." Quality of Life Newsletter, No. 17, March, 1997 - August, 1997, pp 12-13. [Scoring]

Ross, Nancy A., Stephane Tremblay, and Katie Graham, "Neighbourhood Influences on Health in Montreal, Canada." Social Science & Medicine, Vol. 59, No. 7, October, 2004, pp 1485-1494. [HUI3; Construct Validity, Canada]

Sanmartin, Claudia, and Kathy White, "Joint Canada/United States Survey of Health, 2002-03." Au Courant, Statistics Canada Catologue 82-005-XIE, October, 2004, pp 2-3.

Sarma, Sisira, and Wayne Simpson, "A Microeconometric Analysis of Canadian Health Care Utilization." Health Economics, Vol. 15, No. 3, March, 2006, pp 219-239. [HUI3; Construct Valiidty][Canada]

Sawka, A. M., L. Thabane, A. Papionannou, A. Gafni, G. Ioannidis, E. A. Papadimitropoulos, W. M. Hopman, A. Crannery, D. A. Hanley, L. Pickard, and J. D. Adachi, "Health-Related Quality of Life Measurements in Elderly Canadians with Osteoporosis Compared to Other Chronic Medical Conditions: A Population-Based Study from the Canadian Multicentre Osteoporosis Study (CaMOS)." Osteoporosis International, Vol. 116, NO. 12, December 2005, pp 1836-1840. Published online August 18, 2005. [HUI3; Construct Validity][Canada, osteoporosis]

Schultz, Susan E., and Jacek A. Kopec, "Impact of Chronic Conditions." Health Reports, Vol. 14, No. 4, August, 2003, pp 41-53. [HUI3; Construct Validity][Canada]

Shaw, Amanda K., Howard I. Morrison, Kathy N. Speechley, Elizabeth Maunsell, Maru Barrera, Dena Schanzer, Lisa Pogany, Marie Desmeules, "The Late Effects Study: Design and Subject Representativeness of a Canadian Multi-centre Study of Late Effects of Childhood Cancer." Chronic Disease in Canada, Vol.25,3,Summer 2004, pp 1-8. [HUI3][Canada, pediatric oncology]

Shields, Margot, "Proxy Reporting of Health Information." Health Reports, Vol. 15, No. 3, May, 2004, pp 21-33. [HUI3]

Shields, Margot, "Use of Wheelchairs and other Mobility Support Devices." Health Reports, Vol. 15, No. 3, May, 2004, pp 37-41. [HUI3 ambulation; Construct Validity]

Statistics Canada, September 2000 and on-going, Canadian Community Health Survey.
In the first year of each two-year cycle, the survey covers approximately 130,000 Canadians and is designed to provide valid information for each of 136 health regions. In the second year of the cycle, provincial-level surveys are undertaken (n=~30,000). The survey covers household residents 12 years of age and over. HUI3 is included in the survey. The first output is scheduled for release in 2002.
Additional information can be obtained from the official Statistics Canada website at http://www.statcan.ca/english/concepts/health/ccshinfo.htm.

Statistics Canada, Statistical Report on the Health of Canadians. Ottawa: Statistics Canada, Catologue 82-570-X1E, September, 1999. Available from http://www.hc-sc.gc.ca/hppb/phdd/report/eng/report.html

Statistics Canada, The 1991 General Social Survey - Cycle 6: Health - Public Use Microdata File Documentation and User's Guide. Ottawa: Statistics Canada, June, 1992. [Description][Canada, Population Health]

Statistics Canada, Health Status of Canadians: Report of the 1991 General Social Survey. Ottawa: Statistics Canada, Catologue 11-612E, No. 8, March, 1994.[Canada, Population Health]

Sun, Jian, "Adjusting Distributions of the Health Utilities Index Mark 3 Utility Scores of Health-Related Quality of Life." Quality of Life Research, Vol. 12, No. 1, February, 2003, pp 11-20. [HUI3; Construct Validity]

Tambay, Jean-Louis and Gary Catlin, "Sample Design of the National Population Health Sruvey". Health Reports, Nov. 7, No. 1, 1995, pp 29-38. [HUI3; Survey Design][Canada]

Thomas, Vince Salazar, Sultan Darvesh, Chris MacKnight, and Kenneth Rockwood, "Estimating the Prevalence of Dementia in Elderly People: A Comparison of the Canadian Study of Health and Aging and National Population Health Survey Approaches." International Psychogeriatrics, Vol. 13, Supplement 1, 2001, pp 169-175. [HUI3; Construct Validity]

Trakas, Kostas, Kate Lawrence, and Neil H. Shear, "Utilization of Health Care Resources by Obese Canadians." Canadian Medical Association Journal, Vol. 160, No. 10, May 18, 1999, pp 1457-1462. [Construct Validity][Canada, Population Health]

Trakas, Kostas, P. I. Oh, S. Singh, N. Risebrough, and Neil H. Shear, "The Health Status of Obese Individuals in Canada." International Journal of Obesity, Vol. 25, No. 5, May, 2001, pp 662-668. [HUI3; Construct Validity; Interpretation]

Trottier Helen, Laurent Martel, Christian Houle, Jean-Marie Berthelot, and J. Légaré, "Living at Home or in an Institution: What Makes the Difference for Seniors." Health Reports, Vol. 11, No. 4, Spring 2000, pp 49-61; Statistics Canada Catalog # 82-003-XPB. [Construct Validity][Canada]

Tully, P. and C. Mohl, "Older Residents of Health Care Institutions." Health Reports, Vol. 7, No. 3, 1995, pp 27-30. [Description][Canada, Population Health]

van Doorslaer, Eddy, and Andrew M. Jones, "Inequalities in Self-Reported Health: Validation of a New Approach to Measurement." Journal of Health Economics, Vol 22, No. 1, January, 2003, pp 61-87. [HUI3; Construct Validity]

van Doorslaer, Eddy, and Xander Koolman, "Explaining the Differences in Income-Related Health Inequalities Across European Countries." Health Economics, Vol. 13, No. 7, July, 2004, pp 609-628. [HUI3; Construct Validity]

Vasiliadis, Helen-Maria, Alain Lesage, Carol Adair, Philip S. Wang, and Ronald C. Kessler, "Do

Canada and the United States Differ in Prevalence of Depression and Utilization of Services?"

Psychiatric Services, Vol. 58, No. 1, January, 2007, pp 63-71. [HUI3; Construct validity of HUI3

emotion item]

Verrips, G.H.W., M.C. Stuifbergen, A. L den Ouden, G.J. Bonsel, R.J.B.J. Gemke, N. Paneth, and S.P. Verloove-Vanhorick, "Measuring Health Status Using the Health Utilities Index: Agreement Between Raters and Between Modalities of Administration." Journal of clinical Epidemiology, Vol. 54, No. 5, May, 2001, pp 475-481. [HUI3; Inter-rater Reliability; Inter-mode Reliability; Child Health][Netherlands]

Vozoris, Nicholas T., and Valerie S. Tarasuk, "The Health of Canadians on Welfare." Canadian Journal of Public Health, Vol. 95, No. 2, March-April, 2004, pp 115-120. [HUI3; Construct Validity]

Wagstaff, Adam, and Eddy van Doorslaer, "Overall versus Socioeconomic Health Inequality: A Measurement Framework and Two Empirical Illustrations." Health Economics, Vol. 13, No. 3, March, 2004, pp 297-301. [HUI3]

Wall, Ron, and Robyn Foster, "Using Canada's Health Data: Beyond Life Expectancy." Health Policy Research Bulletin, Vol. 1, Issue 3, March, 2002, pp 32-33; 39. [HUI3; Descriptive]

Wang, Qinan, and Geraldine Chen, "The Health Status of the Singaporean Population As Measured by the Health Utilities Index Mark III System." Singapore Medical Journal, 1999, forthcoming. [Cross-Cultural Validation; Description][Singapore, Population Health]

Wolfson, Michael C., "Health-Adjusted Life Expectancy." Health Reports, Vol. 6, No. 1, Summer, 1996, pp 41-46. [Construct Validity][Canada, Population Health] 

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Use of HUI3 in Canadian Population Health Surveys (Listed alphabetically by 1st author)

Adachi, J. D., G. Ioannidis, L. Pickard, C. Berger, J. C. Prior, L. Joseph, D. A. Hanley, W. P. Olszynski, T. M. Murray, T. Anastassiades, W. Hopman, J. P. Brown, S. Kirland, C. Joyce, A. Papioannou, S. Poliquin, A. Tennenhouse, and E. A. Papadimitropoulos, "The Association Between Osteoporotic Fractures and Health-Related Quality of Life as Measured by the Health Utilities Index in the Canadian Multicentre Osteoporosis Study (CaMos)." Osteoporosis International, Vol. 14, No. 11, November, 2003, pp 895-904. [HUI2; HUI3; Construct Validity][Canada, osteoporosis]

Alberta Health and Wellness, Chronic Pain in Alberta: A Portrait from the 1996 National Population Health Survey and the 2001 Canadian Community Health Survey. Edmonton, Alberta Health and Wellness, Health Surveillance, May, 2003. [HUI3 pain; Construct Validity][Canada]

The HUI Mark 3 System was devised for the 1990 Ontario Health Survey and has been incorporated in every major subsequent population health survey in Canada. To date the list of surveys includes:

Ontario Ministry of Health, Ontario Health Survey I, 1990; survey of 35,349 dwellings and 61,239 persons.

Ontario Ministry of Health and Statistics Canada national Population Health Survey, Ontario Health Survey II (1996/97); augmented Ontario sample in the 1996/97 NPHS, 36,892 respondents sampled through random digit dialing.

Statistics Canada, 1991 Sixth Cycle Canadian General Social Survey; survey of health status of 11,760 persons.

Statistics Canada, 1994 and future Canadian National Population Health Survey. 1994-95 survey covers 19,600 households. Longitudinal component to be repeated every two years.

Statistics Canada, 1994 and future National Longitudinal Survey of Children and Youth. 1994-1995 survey covers 22,831 children; coverage newborns to 11 years of age; parental report on children < 10 years of age; self report of child for ? 10 years of age; complete HUI3 data for ages 6 and up; considerable HUI3 data for children ages 4 and 5; public-use data files released in 1998. Longitudinal component to be repeated every two years.

Gilmour, Heather, and Jungwee Park, "Dependency, Chronic Conditions and Pain in Seniors." Health Reports, Supplement to Vol. 16, 2006, pp 21-31, in How Healthy are Canadians? Annual Report 2005, Statistics Canada Catalogue 82-003. [HUI3; Construct Validity of Pain items]

Ramage-Morin, Pamela L., "Successful Aging in Health Care Institutions." Health Reports, Supplement to Vol. 16, 2006, pp 47-56, in How Healthy are Canadians? Annual Report 2005, Statistics Canada Catalogue 82-003. [HUI3; Construct Validity of Pain, Speech, and Hearing items]

Martel, Laurent, Alain Belanger, Jean-Marie Berthelot, and Yves Carriere, "Healthy Aging" Health Today, Healthy Tomorrow? Findings from the National Population Health Survey. Ottawa, Statistics Canada Catologue 82-618-MWE200404, Vol 1, No. 4, May 9, 2005, pp 1-9. [HUI3; Construct Validity]

 

Phipps, Shelley, and Lynn Lethbridge, "Income and the Outcomes of Children." Analytical

Studies Branch Research Paper Series, Business and Labour Market Analysis, Statistics Canada,

Catologue No. 11F00019MIE-No. 281, May, 2006. [HUI3; Construct Validity]

 

Pohar, Sheri L., C. Allyson Jones, Sharon Warren, Karen V. L. Turpin, and Kenneth Warren,

"Health Status and Health Care Utilization of Multiple Sclerosis in Canada." Canadian Journal

of Neurological Sciences, Vol. 34, No. 2, May, 2007, pp 167-174. [HUI3; Construct Validity]

Shields, Margot, and Laurent Martel, "Health Living Among Seniors." Health Reports, Vol. 16, Supplement, March, 2006, pp 7-20. Statistics Canada Catalogue 82-003. [HUI3; construct validity]

Vasiliadis, Helen-Maria, Alain Lesage, Carol Adair, Philip S. Wang, and Ronald C. Kessler, "Do

Canada and the United States Differ in Prevalence of Depression and Utilization of Services?"

Psychiatric Services, Vol. 58, No. 1, January, 2007, pp 63-71. [HUI3; Construct validity of HUI3

emotion item]

Vozoris, Nicholas T., and Valerie S. Tarasuk, "The Health of Canadians on Welfare." Canadian Journal of Public Health, Vol. 95, No. 2, March-April, 2004, pp 115-120. [HUI3; Construct Validity][Canada, population health]

Wall, Ron, and Robyn Foster, "Using Canada's Health Data: Beyond Life Expectancy." Health Policy Research Bulletin, Vol. 1, Issue 3, March, 2002, pp 32-33; 39. [HUI3; Descriptive]

Wilkins, Kathryn, "Predictors of Death in Seniors." Health Reports, Supplement to Vol. 16, 2006, pp 57-67, in How Healthy are Canadians? Annual Report 2005, Statistics Canada Catalogue 82-003. [HUI3; Construct Validity; Predictive Validity]

Wolfson, Michael, and Geoff Rowe, "Disability and Informal Support: Prospects for Canada," in Steven B. Cohen and James M. Lepkowski, eds., Eighth Conference on Health Survey Research Methods. Hyattsville, MD, National Center for Health Statistics, July, 2005, DHHS Publication No. (PHS) 04-1013, pp 15-22. [HUI3; Construct Validity]

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Selected Examples of Applications of the Health Utilities Index (HUI):
Clinical Area or Health-Care Problem

  • Acquired Immune Deficiency Syndrome and HIV
    • see Bayoumi, Revicki
  • Alzheimer Disease
    • see Neumann
  • Antiarrhythmic Agents
  • Anxiety
  • Arthritis
    • see Beaton
  • Asthma
    • see Leidy
  • Benign Prostatic Hyperplasia
    • see Baladi
  • Bone Marrow Transplantaion
    • see Barr, Kanabar, Kiltie
  • Brain Injury
  • Brain Tumour
    • see Barr, Whitton
  • Breast Cancer
  • Bronchitis
    • see Torrance, Grossman
  • Cardiac Arrest
    • see Nichol
  • Cardio-vascular Disease, various
  • Childhood Cancers, various
    • see Barr, Whitton, Feeny
  • Chronic Liver Disease see Liver Disease
  • Dementia
  • Diabetic Foot Ulcer
    • see Hux
  • Dialysis
  • Epilepsy
  • Growth Hormone
  • Hearing Loss
    • see Wyatt
  • Hodgkins Disease
    • see van Schaik
  • Hypertension
  • Liver Disease
    • see Younossi
  • Liver Transplantation
    • see Mills
  • Lung Cancer
  • Lung Reduction Surgery
  • Lung Transplantation
  • Lupus
    • see Fortin
  • Mental Health
  • Migraine
  • Multiple Sclerosis
    • See Grima
  • Neonatal Intensive Care,
    • see Boyle
  • Neonatal Intensive Care, long-term follow-up
    • see Saigal
  • Osteoporosis
    • see Gabriel, Rosner
  • Pediatric Asthma
    • see Juniper
  • Pediatric Intensive Care
    • see Gemke
  • Pediatric Surgery/Spasticity
  • Peripheral Artery Disease
    • see Bosch, de Vries
  • Post-Stroke Spasticity
  • Prostate Cancer
    • see Albertson
  • Renal Dialysis
  • Rhinitis
    • see Revicki
  • Spinal Surgery
  • Stroke
    • see Mathias, Grootendorst, Samson
  • Total Hip Replacement
  • Total Knee Replacement
    • see Bennett
  • Vaccines
  • Vision Problems

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Selected Examples of Applications of the Health Utilities Index (HUI):
Countries in Which HUI Is Being or Has Been Used

Argentina

see Szecket

Australia

see Richardson, Hawthorne

Austria

see Frey, Fielder

Belgium

 

Brazil

 

Canada

see Barr, Feeny, Grootendorst, Torrance, Speechley, Baladi, Rosner, Grossman, Saigal, Trudel, van Schaik, Whitton

Colombia

 

Cuba

 

Denmark

 

Finland

 

France

see Le Galès, Costet, Buron

Germany

 

Honduras

 

Israel

 

Jamaica

 

Japan

 

Netherlands

see Gemke, Bosch, de Vries, de Keizer

New Zealand

 

Norway

 

Singapore

see Wang

Sweden

 

Switzerland

 

Turkey

see Yaris

 

United Arab Emirates

 

 

United Kingdom

see Kennedy, Glaser, Billson, Feeny, Kanabar, Kiltie

 

United States of America

see Revicki, Mathias, Glick, Neumann, Samsa, Bennett

 

Uruguay

 

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(R) HUI Registration:  USA 2660116, 2716082;  UK 2228611, 2228610;  CAN TMA544008, TMA550246.


HUI Bibliography / References last updated – November 20, 2007
HUI Webpages designed and maintained by John R. Horsman
© Copyright HUInc 1999-2007. All rights reserved.